The specialist myeloma clinical team at UCLH comprises three Consultants, one or two Research Fellows and two Clinical Nurse Specialists. There are four myeloma outpatient clinics a week, seeing on average 300 patients a month. We have a dedicated myeloma MDT that includes clinical oncologists, pain specialists, palliative care clinical nurse specialists, spinal surgeons and musculo-skeletal radiologist. We have a dedicated Spinal MDT and a Joint Neuropathy clinic, run every 2 months. We have a large and active clinical trial programme, from phase I first-in-man studies to randomized phase III trials. Our patients have the opportunity to receive novel treatments, including state-of-the-art protocols. Around 50% of the patients receiving treatment are on clinical trials, and they are supported by two myeloma research nurses and one myeloma clinical trials practitioner. We perform 40-50 stem cell transplants annually, the majority are autologous stem cell transplants. We have access to an experienced physiotherapist, who offers advice and exercise programmes where appropriate.
- Multiple myeloma
We have about 500 patients with multiple myeloma under regular follow-up. Of these about 70 per cent are under shared care with our partner trusts. Referrals are seen as dictated by clinical need, and urgent ones are seen within the week.
Our clinical nurse specialist meets with the patients at their first consultation and stays with them throughout their myeloma journeys. Patients on clinical trials also have access to research nurses/clinical trial practitioners. Early referrals to symptom control and palliative care services ensures an integrated and holistic management approach.
The myeloma CNS’s support patients after discharge, providing telephone follow-up as required, and reviewing them in the myeloma nurse-led clinic.