Myeloma 

The specialist myeloma clinical team at UCLH comprises three Consultants, one or two Research Fellows and two Clinical Nurse Specialists. There are four myeloma outpatient clinics a week, seeing on average 300 patients a month.  We have a dedicated myeloma MDT that includes clinical oncologists, pain specialists, palliative care clinical nurse specialists, spinal surgeons and musculo-skeletal radiologist.  We have a dedicated Spinal MDT and a Joint Neuropathy clinic, run every 2 months.  We have a large and active clinical trial programme, from phase I first-in-man studies to randomized phase III trials.  Our patients have the opportunity to receive novel treatments, including state-of-the-art protocols. Around 50% of the patients receiving treatment are on clinical trials, and they are supported by two myeloma research nurses and one myeloma clinical trials practitioner.  We perform 40-50 stem cell transplants annually, the majority are autologous stem cell transplants. We have access to an experienced physiotherapist, who offers advice and exercise programmes where appropriate.

Conditions treated

  • Multiple myeloma
  • Plasmacytoma
  • Amyloidosis
  • MGUS
  • POEMS
Service performance

We have about 500 patients with multiple myeloma under regular follow-up. Of these about 70 per cent are under shared care with our partner trusts. Referrals are seen as dictated by clinical need, and urgent ones are seen within the week.

Patient support services

Our clinical nurse specialist meets with the patients at their first consultation and stays with them throughout their myeloma journeys.  Patients on clinical trials also have access to research nurses/clinical trial practitioners. Early referrals to symptom control and palliative care services ensures an integrated and holistic management approach.

Patient aftercare

The myeloma CNS’s support patients after discharge, providing telephone follow-up as required, and reviewing them in the myeloma nurse-led clinic.

Dr Shirley D'Sa Clinical haematology, Myeloma, Waldenström’s macroglobulinaemia, Cancer services at UCLH
Prof Kwee Yong Clinical haematology, Myeloma, Cancer services at UCLH, Pathology
Dr Neil Rabin Clinical haematology, Myeloma

 Contact details

Myeloma
University College Hospital Macmillan Cancer Centre
Huntley Street
London, WC1E 6AG
 
Outpatient clinics - 1st and 4th floors
Haematology day care - 4th floor
Blood tests/phlebotomy - lower ground floor

GP enquiries
Fax: 020 3447 9911

Other information

For all General & GP enquires regarding Myeloma please contact Ysabel Howard on 0203 447 8028

If you are a patient please call the Patient Telephone Line for all queries to your team: 0203 447 7359. Please note the line is open Monday to Friday 9am-5pm.

Outside of the office hours (listed above) and for medical advice only, patients may call the haematology ward : 07852 220 900.

Please note this line is for patients only –medical professionals should call the general enquiries line for any patient related queries.

 Patient testimonials

"I think, most importantly, that I have been aware that the treatment that I have received in the Myeloma Unit at UCH is absolutely Gold standard!  The professional and pastoral care received from you, your fellow consultants, (in particular Neil Rabin and Shirley D’Sa) has been outstanding over the years."

 Useful links