National Prion Clinic (NPC) 

Our National Prion Clinic (NPC)'s multidisciplinary team comprises consultant neurologists, clinical research fellows and clinical nurse specialists. We offer comprehensive assessment, diagnostic services and investigation for all forms of the disease including neuropsychology, neurophysiology, imaging, genetic testing, and tissue diagnosis. We are a mobile service that will visit patients throughout the UK at short notice, providing clinical expertise for a rare neurodegenerative disease.

Conditions

We provide diagnosis and care for all forms of prion disease:

  • Inherited/familial prion disease
  • Iatrogenic prion disease
  • Sporadic CJD
  • Variant CJD

We accept referrals for all undiagnosed neurological conditions if there is a suspicion of prion disease.

Service statistics

The clinic receives approximately 12 new referrals a month. Families and local teams are contacted the day the referral is made and we aim to review new patients within a week.

Patient support services

Each patient is allocated a named nurse who will manage their care for the duration of their involvement in the clinic. Their nurse will be available via telephone or email, be present at their outpatient appointments, visit them at home, and attend case conferences as necessary.

All patients also have access to the support and advocacy service and can been seen by the clinical staff as an outpatient or in their own home.

Patient aftercare

We act as a support service to your local GP or hospital consultant. At their discretion we normally see patients and their families for the duration of the illness. 

Simon Mead

Dr Simon Mead
Consultant

Dr Simon Mead National Prion Clinic (NPC), Neurology and neurosurgery

 Contact details

National Prion Clinic (NPC)
National Hospital for Neurology and Neurosurgery
Box 98
Queen Square
London, WC1N 3BG

Patient enquiries
Telephone: 020 3448 4037 / 020 3448 4038

GP enquiries
Telephone: 020 3448 4037 / 020 3448 4038
Fax: 020 3448 4046
Email: michelle.gorham@uclh.nhs.uk

Service manager - Michelle Gorham
Email: michelle.gorham@uclh.nhs.uk

 Useful links

 NHNN interactive hospital service guide