Neuromuscular Diseases Team shortlisted for prestigious healthcare award 

05/10/2016 00:00 
The neuromuscular service at the NHNN is in running for a Health Service Journal (HSJ) honour for Specialist Service Redesign.
The neuromuscular diseases team who've been nominated for a top healthcare award. 

Nominated for a top healthcare award, Dr Ros Quinlivan, consultant in neuromuscular diseases, and her team are recognised for the new services at the Neuromuscular Complex Care Centre at the National Hospital for Neurology and Neurosurgery.

Dr Quinlivan said: “We are thrilled with the news - it is well deserved recognition for the whole team and their inspiring work. We have created a new model of care for patients with muscle wasting neurological diseases which has led to a significant improvement in patient care and we hope will lead to improved outcomes. Patients with highly complex care needs who previously would have died in childhood can now transition in to adult care and look forward to genuine improvements in their quality of life.”

There are estimated to be over 100,000 patients with these diseases in the UK. A growing number of these are young adults living with severe childhood onset conditions such as Duchenne Muscular Dystrophy (DMD). The National Institute for Health and Care Excellence (NICE) guidance for the management of Duchenne Muscular Dystrophy recommends anticipatory coordinated multidisciplinary care to manage complications and to provide expert advice on equipment and treatments. Too often affected adults are simply going without this kind of specialist support, resulting in emergency admissions, increased risk of intensive care admissions and reduced life expectancy.

Professor Michael Hanna, consultant neurologist, said: “There were a great many obstacles to making this unit a reality which Ros and the team skilfullly overcame with crucial support from the UCLH Charity.

"Key to the success was the centre’s holistic approach, placing the patient at the centre of their own care. The improvement in patient experience cannot be underestimated. Getting rare disease care right is critical in the changing NHS landscape – it not only has the potential to save costs but also to enhance the potential for research in these often neglected disorders. Our ultimate ambition is to support the roll out of this model to each NHS region across England.”

The 2016 Health Service Journal Awards is in partnership with de Poel health + care. Winners will be presented with awards at a ceremony on 23 November at Intercontinental O2, London. To see the full list of judges and for more information visit HSJ.

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