Neuromuscular care centre shortlisted for Prime Minister's award 

08/10/2014 00:00 
The UK’s first dedicated inpatient centre for people with complex neuromuscular disorders at UCLH has been shortlisted for the Prime Minister’s Better Public Buildings award at the British Construction Industry Awards this evening.
Sir Robert Francis meets patients at the NMCCC 

The Neuromuscular Complex Care Centre (NMCCC) was created at the National Hospital for Neurology and Neurosurgery (NHNN) in 2014.
It makes access to health services easier, and outcomes better, for patients with neuromuscular and inherited metabolic disorders who need highly complex nursing and medical care.
Patients who use the centre have profound muscle weakness and typically have multiple organ dysfunction including respiratory, cardiac, and gastrointestinal systems. By bringing multi-disciplinary care under one roof in the first centre of its kind in the country, the NMCCC gives patients a longer and better quality of life, and reduce unplanned admissions to hospital which increase stress on both patients and carers.
Following its official opening by health advocate Sir Robert Francis in September, it has now been nominated for the Building Project of the Year (up to £10m), and is also nominated for the Prime Minister's Better Public Building award.
The most common condition seen at the centre is Duchenne muscular dystrophy which affects one in 3,600 boys. In Denmark, where care is already centralised, patients survive to their late 40s compared to London where survival is only to mid- 30s (the average being late 20s).
Commissioners estimate that around £10m a year is spent in London managing emergency admissions to hospital for patients with complex neuromuscular disorders. Nearly half of these could be avoided if the right care packages were in place.
The centre has been built at UCLH’s National Hospital for Neurology and Neurosurgery, which has some of the world’s leading neurologists in neuromuscular diseases and a broad multi-disciplinary team including: neurology, cardiology, respiratory, gastroenterology and anaesthetic consultants; physiotherapists, a psychologist, dietician, specialist nurses, speech and language therapist and occupational therapist.
Ros Quinlivan, consultant in Neuromuscular Diseases at the NMCCC, said: “The whole ethos of the NMCCC is to look at the whole patient and their needs. The development of this centre shows how world-beating care can be provided at less cost than fragmented care. Rationalising services in a streamlined approach during one visit is cost-effective and better for the patient.”
Opening the centre in September, Sir Robert Francis QC said: “It is a real pleasure to be present at something that is so definitely going right and going to be a beacon for excellence. The development of this centre shows how world-beating care can be provided at less cost than fragmented care. The centre is inspired by the commitment of the people who work here.”

QS Enterprises Imaging Company, a wholly-owned trading subsidiary of UCLH Charity, provided £2.4m to build and equip the centre. The unit has six beds with the latest respiratory and medical monitoring equipment. It will act as a link between patients’ homes and communities with a 24-hour hotline to support patients and give advice.


 

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