New website pages to mark World MS Day 

27/05/2015 00:00 
People with multiple sclerosis (MS) and their carers can now find expert information and advice on a new section of the UCLH website.
 

The new pages - www.uclh.nhs.uk/multiplesclerosis - have been launched to coincide with the annual World Multiple Sclerosis (MS) Day.

The content has been developed to meet the needs of people on different stages of their MS journey from advice on our services for those who are newly diagnosed, to a section on living with MS and information about research trials and how to access them.

MS nurse consultant Bernadette Porter said: “MS patients and carers were involved in the development of the content from the start. We surveyed them to ask what they wanted, and asked them what they thought of what we’ve developed, so we’re sure that our new pages are meeting the needs of our patients.”

One feature of the site is a section dedicated to the experiences of MS patients at the National Hospital for Neurology and Neurosurgery (NHNN), including engaged couple Aris Giourgas and Jackie Mullane. The pair met as patients at the NHNN and host a Facebook group for people with MS which has almost 20,000 members.

Aris, who was first diagnosed with MS in 1996, said: “It’s great that Bernadette Porter and her team have really gone out and talked to patients about what content to include on their MS web pages. Jackie and I have a lot to thank the NHNN for, not least for bringing us together. I absolutely love the hospital and the staff. Everyone is very professional and as a result of the treatment I’ve been receiving I’ve only had two heavy relapses in almost 20 years.”

The pages were developed using the same approach taken to build our award winning paediatric diabetes web pages. Recruitment, maternity and some cancer services pages are also due for a makeover in the coming months.

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