Get involved with cancer 

Would you like to be involved with improving cancer services?

Are you a patient or carer affected by cancer? Would you like to join us to help shape cancer services and improve early diagnosis across our region?

UCLH Cancer Collaborative has various opportunities for people who have had cancer treatment, or cared for someone who has had cancer treatment, at one of the 17 NHS hospitals in north and east London, and west Essex to get involved in our work.

This includes our recently launched Patient Experience and User Involvement Steering Group and Patient and Carer Network (see below for further details).

You must be committed to working collaboratively and broadly represent the diverse views and needs of people affected by cancer. Participation in other cancer networks and links to community groups is considered really helpful.

Watch our short video to learn more about UCLH Cancer Collaborative and the Patient and Carer Network.

How to find out more

If you would like to find out more about opportunities to get involved in our work or are interesting joining the Patient and Carer Network, please email uclh.getinvolvedwithcancer1@nhs.net or call 020 344 72779 or 07950 960 159. A member of our team will get back to you as soon as possible.

  • Current engagement and involvement opportunities

    Help us use a “teachable moment” to share advice about cancer prevention when it’s most effective

    We are looking for two patient/carer representatives to join the Project Group for an exciting new cancer awareness project in North and East London.

    You’ll work with us to develop new cancer education events which reach people when they are more likely to be receptive to making healthy lifestyle changes, and to information about how to spot early cancer signs and symptoms.

    We are looking for people who either:

    • Have a special interest in raising public awareness of cancer; or
    • Have been urgently referred by their GP for cancer testing, whether or not this resulted in a cancer diagnosis (you might have been told you were on a “2 week wait” pathway); or
    • Have attended a cancer education event, such as a “Health and Wellbeing” event

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net. The deadline is Friday 25th December 2019.

     

    Work with us to develop training for nurses which will support earlier diagnosis of colorectal cancer

    We’re looking for two patient/carer representatives with an interest in nursing education and improving early diagnosis of colorectal cancer to join the Working Group for an important new project.

    You’ll help us improve experience and reduce waiting times for patients who have been referred by their GP to be urgently tested for possible colorectal cancer. By co-designing new training for nurses, you will ensure that an innovative fast track service meets the needs of patients in north and east London.

    We’re looking for people who either:

    • Have an interest in nursing training and education; or
    • Have personal experience of testing and/ or treatment for colorectal cancer; or
    • Have personal experience of telephone triage during testing for another sort of cancer; or
    • Have cared for someone with personal experience of being tested and/or treated for colorectal cancer.
    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net.
     
     
     

    Alliance Diagnostic Hub in north east London – Patient Advisory Group

    We are looking for people to help us develop and launch a new Alliance Diagnostic Hub for cancer in north east London. This pioneering Hub will be the first in the country.

    We are looking for people to join a Patient Advisory Group for the Diagnostic Hub, which will:

    • Provide easier and faster diagnosis of cancer
    • Improve monitoring of people with health conditions that put them at higher risk of developing cancer
    • Have a person-centred approach to diagnosis
    • Be a training centre of excellence for NHS staff
    • Explore cutting edge research, technologies and techniques

    We are looking for people who:

    • Have experience of prostate, upper gastrointestinal (GI) or colorectal/bowel cancers (as a patient or family member); or
    • Have liver cirrhosis, Barrett’s Oesophagus, Inflammatory Bowel Disease (IBD), or polyps; or
    • Are a member of a community group in north east London

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net

     

    Using routine health data to diagnose lung cancer earlier – project group

    We are looking for two people to join a project group as patient or carer representatives. We’re looking for people with a keen interest in health data, a passion for early diagnosis, and a willingness to learn. We’d welcome people with experience of any kind of cancer for this project.

    We don’t fully understand why outcomes in London are so poor for lung cancer. UCLH Cancer Collaborative is embarking on this project with Cancer Research UK’s Early Diagnosis Advisory Group to identify ‘actionable moments’ in the year before a person is diagnosed.

    This project will use linked information from GPs and hospitals in north east London to better understand this variation, and make an impact on diagnosis and treatment.

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net

     

    Patient Experience and User Involvement Steering Group – co-chair and members

    Our Steering Group is made up of people affected by cancer who are passionate about engaging communities and making an impact on the future of cancer care. The Steering Group oversees all of the work we do to improve experience of care and work collaboratively with local communities.

    We are looking for a co-chair, and also for additional members. The co-chair receives payments for involvement, in recognition of the contribution of this important role.

    If you enjoy thinking strategically, are committed to representing the diverse perspectives of everyone affected by cancer and working collaboratively with healthcare professionals, then this could be the opportunity for you.

    We’re particularly keen to hear from people from black and minority ethnic communities, who live in east London boroughs, or who were treated at Barts Health, North Middlesex, Princess Alexandra or Homerton Hospitals.

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net

  • What does joining the Patient and Carer Network involve?

    Being a member of the Patient and Carer Network (PCN) means you will receive our e-bulletin each quarter and hear about a variety of opportunities available for people with different skills, interests, and a varying amount of time to offer. From time to time, we will let you know about a range of engagement events and involvement opportunities, for example:

    • joining a one-off focus group
    • attending workshops e.g. to develop communications material
    • helping to develop patient surveys
    • helping to conduct patient surveys
    • joining a time bound steering group overseeing a project
    • supporting our community outreach and engagement plans
    • being a part of an interview panel
    • contributing to a document review group by email
    • being a member of our PE&UI Steering Group,
    • joining a Pathway Board or an Expert Reference Groups
    • sharing your experience at specific events and within teaching programmes
    • helping us reach out to seldom heard from community groups
    • coming along to our networking events for people affected by cancer
    • attending our annual conference

    If you know of friends, family, colleagues, neighbours or members of your local community who have been affected by cancer, who might be interested in our work, please let them know about our Patient and Carer Network.

    Please email uclh.getinvolvedwithcancer1@nhs.net or call 020 344 72779 if you are interested in finding our more.