Frequently Asked Questions (FAQs) 

  • I am under the care of UCLH and also my local team. Who should I contact with queries?

    If you do not live locally to University College Hospital and share care with a local rheumatology service or paediatric service you should make contact with them in the first instance. It is important that your local team are a central part of your care, and we think it is important that local teams are involved in day to day decisions. We are very happy to work closely with other teams and provide specific advice when requested.
  • I wish to call on behalf of my son or daughter, is this allowed?

    We prefer to talk directly to the young person rather than to parents or third parties, so that they develop the skills to look after their health needs. If your child is 16 years or older and sends us written consent (e.g. via an email to the department or via a letter) then with their permission we can discuss a particular issue.
  • I have a query about my medication / Methotrexate / Enbrel, Humira etc. Who should I contact?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email: UCLH.rheumatology@nhs.net who will make sure your message is passed on to our clinical team. If you do not live locally to University College Hospital and share care with a local rheumatology service or paediatric service you should make contact with them in the first instance.
  • My illness is getting worse and I have swollen joints and need advice who should I contact?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email: UCLH.rheumatology@nhs.net who will make sure your message is passed on to our clinical team. If you do not live locally to University College Hospital and share care with a local rheumatology service or paediatric service you should make contact with them in the first instance.
  • I am having side effects from my rheumatology medication who should I contact?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email: UCLH.rheumatology@nhs.net who will inform the most appropriate member of the team, which could be the clinical nurse specialist or the rheumatology SpR. (Doctor). Someone will get back to you, usually within 2 working days. If you do not live locally to University College Hospital and share care with a local rheumatology service or paediatric service you should make contact with them in the first instance.
  • I have a query about my clinic appointment, day care appointment or inpatient admission who should I contact?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email:UCLH.rheumatology@nhs.net who will forward your message to the clinical nurse specialists or to the rheumatology SpR(doctor). Someone will get back to you, usually within 2 working days.
  • I have a query about my blood test result who should I contact?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email:UCLH.rheumatology@nhs.net who will forward your message to the clinical nurse specialists or to the rheumatology SpR(doctor). Someone will get back to you, usually within 2 working days.
  • I suffer from chronic pain and am in the rehabilitation program under the care of the Physiotherapist or Occupational therapist and have a query - how do I contact them?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email: UCLH.rheumatology@nhs.net who will forward your message to the clinical nurse specialists or to the rheumatology SpR(doctor). Someone will get back to you, usually within 2 working days.
  • I am travelling and am on Enbrel and Methotrexate and need advice on if I can have a certain vaccine who should I contact?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email: email: UCLH.rheumatology@nhs.net who will pass your message onto the clinical nurse specialist or the rheumatology doctors. It is important to discuss vaccinations with a member of our team as some vaccinations cannot be given to patients receiving certain medications. If you do not live locally to University College Hospital and share care with a local rheumatology service or paediatric service you should make contact with them in the first instance.
  • Can I have the Flu vaccine?

    We advise all our patients that are on immunosuppressant medication to have the flu vaccine injection annually. We do not recommend receiving the live attenuated nasal flu vaccine. We recommend patients on immunosuppressant medication also have the pneumococcal vaccine every five years.
  • The school is vaccinating all the girls against the Human Papilloma virus (HPV). Can I be vaccinated even though I take Enbrel and/or Methotrexate? Who should I contact for advice?

    Call or email Our Adolescent Rheumatology Coordinator (Telephone: 020 3447 9215 / email: UCLH.rheumatology@nhs.net) who will forward your message to the clinical nurse specialists or to the rheumatology SpR (doctor). Someone will get back to you, usually within 2 working days.