Long-term-follow-up (LTFU): Late effects of Cancer 

Long-term follow-up (LTFU) describes the ongoing check ups needed after treatment for cancer has been completed.The follow-up appointments provide monitoring for any health problems or emotional problems which might have been caused by previous  treatment.

The service primarily caters for young people and adults treated in the paediatric cancer service at Great Ormond Street Hospital (GOSH) and young people and adults treated in the Teenage and Young Adult (TYA) service  at University College Hospital (UCH). The LTFU service will  accept external referrals from other specialist centres or GP's.
 
We operate as a unified cancer centre together with Great Ormond Street and collectively form one of the largest paediatric/adolescent oncology centres in Europe. This alliance allows for excellent patient care and the seamless and efficient transition of patients between services.

Young people who are transferring from the children's to adult services are offered an appointment in the transition clinic with the lead clinical nurse specialist. After the first appointment a plan of care is discussed further follow-up appointments are planned in the most appropriate clinic.

Conditions treated

The LTFU service at UCLH has been developed to offer specialist follow-up after childhood cancer in an age appropriate environment. Young people and adults who were treated for all childhood cancer types are seen in the service.

Not all treatment for childhood cancer causes problems but some people do need the medical support of a number of different specialists. These include reproductive medicine (fertility), endocrinology (hormones) and nephrology (kidney)  along with expert oncologists, haematologists and a clinical nurse specialist who all have expertise about the long-term effects of chemotherapy,  radiotherapy and surgery.

Sometimes it is necessary to refer to other adult specialists and many of these specialists are available at UCLH.

There are currently over 1000 patients who are being treated in the UCLH follow-up service.

Patient support services

Our service co-ordinator provides a point of contact from Monday to Friday, 9am to 5pm either by telephone or email. A member of the clinical team will discuss any treatment related medical or psychological concerns.

Additionally, the Macmillan Support and Information Centre located within the outpatient building provides support and advice on cancer-related conditions to patients and relatives.

Our consultants

Dr Stephanie Baldeweg Long-term-follow-up (LTFU): Late effects of Cancer, Diabetes, Endocrinology, Brain Tumour Service (Neuro-Oncology)
Dr Yen-Ching Chang Long-term-follow-up (LTFU): Late effects of Cancer, Radiotherapy
Dr Melanie Davies Long-term-follow-up (LTFU): Late effects of Cancer, Reproductive Medicine Unit
Dr Victoria Grandage Blood Diseases (clinical haematology), Long-term-follow-up (LTFU): Late effects of Cancer, Children and young people's cancer services, Children and young people's services
Dr Helen Spoudeas Long-term-follow-up (LTFU): Late effects of Cancer, Children and young people's endocrinology, Children and young people's services
Prof Jeremy Whelan Long-term-follow-up (LTFU): Late effects of Cancer, Sarcoma - The London Sarcoma Service, Children and young people's cancer services
Dr Rachael Windsor Long-term-follow-up (LTFU): Late effects of Cancer, Sarcoma - The London Sarcoma Service, Children and young people's cancer services

 Contact details

Long-term-follow-up (LTFU)
University College Hospital Macmillan Cancer Centre
Huntley Street
London
WC1E 6AG

General enquiries
Telephone: 020 3447 5536

GP enquiries
Telephone: 020 3447 5536
Fax: 020 3447 9870
Email: ucl-tr.LateEffectServ@nhs.net

Service manager - Paul Ryves
Email: paul.ryves@uclh.nhs.uk

 Useful links