Patient experience and getting involved with cancer care 

  • Getting involved with cancer care

    We aim to involve patients, carers and the wider public to shape and influence cancer care in trusts and the community across the region. We send out information via this website and in other more direct ways when there are projects which need public and patients input.
  • Patient experience

    A key aim of UCLH Cancer Collaborative is to work with trusts, community services, Clinical Commissioning Groups (CCGs), voluntary sector partners, patients, carers and the wider community across north central and north east London, and west Essex to improve early cancer diagnosis, outcomes and patient experience. Our ambition is that all individuals with cancer who are accessing services within our geography are having a positive experience in relation to the top ten things that matter most to patients, outlined below.

    These ten priorities were identified in research with patients and professionals carried out in 2011.

    • Early diagnosis - patients are diagnosed at an earlier stage
    • Ethos - patients are treated holistically as individuals, and with dignity, sensitivity and respect so patients do not feel they are treated as a set of cancer symptoms
    • Communication - written and verbal information about diagnosis, all treatment options including side effects and quality of life implications
    • Choice - patients/carers fully involved in choice of hospital and treatment options
    • Support - information provided on support groups, benefits entitlement, offered emotional/psychosocial support
    • Carers - fully involved and supported throughout pathway
    • Person centred approach - Holistic assessment at appropriate stages throughout the pathway, with action as a result to meet their needs
    • Seamless care - all patients assigned a CNS when diagnosed and community keyworker on discharge
    • Transport - travel when necessary, appropriate arrangements made for immune-suppressed patients; patients provided with free parking or transport vouchers
    • Discharge - patient and GP provided with discharge information and follow up advice.

    National Cancer Patient Experience Survey (NCPES)

    The National Cancer Patient Experience Survey asks people with cancer across England for their views on their care. If you would like to find out more about the latest findings, please click here. You can search by trust or by your Clinical Commissioning Group (CCG) area.

  • Working with trusts in the region

    We are working with lead cancer nurses, Macmillan information managers, clinical nurse specialists (CNS), patient experience teams and other key stakeholders across our sector to share learning and expertise and identify opportunities for joint working to address areas that require further support and improvement.