Get involved with cancer 

Would you like to be involved with improving cancer services?

Are you a patient or carer affected by cancer? Would you like to join us to help shape cancer services and improve early diagnosis across our region?

UCLH Cancer Collaborative has various opportunities for people who have had cancer treatment, or cared for someone who has had cancer treatment, at one of the 17 NHS hospitals in north and east London, and west Essex to get involved in our work.

This includes our recently launched Patient Experience and User Involvement Steering Group and Patient and Carer Network (see below for further details).

You must be committed to working collaboratively and broadly represent the diverse views and needs of people affected by cancer. Participation in other cancer networks and links to community groups is considered really helpful.

How to find out more

If you would like to find out more about opportunities to get involved in our work or are interesting joining the Patient and Carer Network, please email uclh.getinvolvedwithcancer1@nhs.net or call 020 344 72779 or 07950 960 159. A member of our team will get back to you as soon as possible.

  • Current engagement and involvement opportunities

    Steering Group – Using self-sampling kits to increase early detection of cervical cancer

    We are looking for two people affected by cervical changes or cervical cancer to join a Steering Group as patient or carer representatives.

    We know that when cervical cancer is detected at an early stage, treatment is less invasive and patients are likely to have a better quality of life in the long term. However cervical cancer screening uptake in London is the poorest in the UK, with some patches of north east London having some of the lowest rates of all.

    Research studies have shown that screening uptake is increased when women are offered the chance to take a screening sample themselves - in private and at a time of their choice. This project will be introducing the use of self-sampling human papilloma virus (HPV) kits in GP Practices across north east London, with the aim of increasing early detection of HPV, which can lead to cervical cancer.

    If you are interested in applying to be a patient/carer representative on this Steering Group please read the following information and contact the team on uclh.getinvolvedwithcancer1@nhs.net by Monday 24 September 2018.

     

    Alliance Diagnostic Hub in north east London – Patient Advisory Group

    We are looking for people to help us develop and launch a new Alliance Diagnostic Hub for cancer in north east London. This pioneering Hub will be the first in the country.

    We are looking for people to join a Patient Advisory Group for the Diagnostic Hub, which will:

    • Provide easier and faster diagnosis of cancer
    • Improve monitoring of people with health conditions that put them at higher risk of developing cancer
    • Have a person-centred approach to diagnosis
    • Be a training centre of excellence for NHS staff
    • Explore cutting edge research, technologies and techniques

    We are looking for people who:

    • Have experience of prostate, upper gastrointestinal (GI) or colorectal/bowel cancers (as a patient or family member); or
    • Have liver cirrhosis, Barrett’s Oesophagus, Inflammatory Bowel Disease (IBD), or polyps; or
    • Are a member of a community group in north east London

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net by Monday 27 August 2018.

     

    Using routine health data to diagnose lung cancer earlier – project group

    We are looking for two people to join a project group as patient or carer representatives. We’re looking for people with a keen interest in health data, a passion for early diagnosis, and a willingness to learn. We’d welcome people with experience of any kind of cancer for this project.

    We don’t fully understand why outcomes in London are so poor for lung cancer. UCLH Cancer Collaborative is embarking on this project with Cancer Research UK’s Early Diagnosis Advisory Group to identify ‘actionable moments’ in the year before a person is diagnosed.

    This project will use linked information from GPs and hospitals in north east London to better understand this variation, and make an impact on diagnosis and treatment.

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net by Monday 10 September 2018.

     

    Patient Experience and User Involvement Steering Group – co-chair and members

    Our Steering Group is made up of people affected by cancer who are passionate about engaging communities and making an impact on the future of cancer care. The Steering Group oversees all of the work we do to improve experience of care and work collaboratively with local communities.

    We are looking for a co-chair, and also for additional members. The co-chair receives payments for involvement, in recognition of the contribution of this important role.

    If you enjoy thinking strategically, are committed to representing the diverse perspectives of everyone affected by cancer and working collaboratively with healthcare professionals, then this could be the opportunity for you.

    We’re particularly keen to hear from people from black and minority ethnic communities, who live in east London boroughs, or who were treated at Barts Health, North Middlesex, Princess Alexandra or Homerton Hospitals.

    If you are interested, please read the following information and send a completed Expression of Interest form to uclh.getinvolvedwithcancer1@nhs.net by the deadline of Monday 3 September 2018.

  • What does joining the Patient and Carer Network involve?

    Being a member of the Patient and Carer Network (PCN) means you will receive our e-bulletin each quarter and hear about a variety of opportunities available for people with different skills, interests, and a varying amount of time to offer. From time to time, we will let you know about a range of engagement events and involvement opportunities, for example:

    • joining a one-off focus group
    • attending workshops e.g. to develop communications material
    • helping to develop patient surveys
    • helping to conduct patient surveys
    • joining a time bound steering group overseeing a project
    • supporting our community outreach and engagement plans
    • being a part of an interview panel
    • contributing to a document review group by email
    • being a member of our PE&UI Steering Group,
    • joining a Pathway Board or an Expert Reference Groups
    • sharing your experience at specific events and within teaching programmes
    • helping us reach out to seldom heard from community groups
    • coming along to our networking events for people affected by cancer
    • attending our annual conference

    If you know of friends, family, colleagues, neighbours or members of your local community who have been affected by cancer, who might be interested in our work, please let them know about our Patient and Carer Network.

    Please email uclh.getinvolvedwithcancer1@nhs.net or call 020 344 72779 if you are interested in finding our more.