Get involved with cancer 

Would you like to be involved with improving cancer services?

Are you a patient or carer affected by cancer? Would you like to join us to help shape cancer services and improve early diagnosis across our region?

UCLH Cancer Collaborative has various opportunities for people who have had cancer treatment, or cared for someone who has had cancer treatment, at one of the 17 NHS hospitals in north and east London, and west Essex to get involved in our work.

This includes our recently launched Patient Experience and User Involvement Steering Group and Patient and Carer Network (see below for further details).

You must be committed to working collaboratively and broadly represent the diverse views and needs of people affected by cancer. Participation in other cancer networks and links to community groups is considered really helpful.

How to find out more

If you would like to find out more about opportunities to get involved in our work or are interesting joining the Patient and Carer Network, please email uclh.getinvolvedwithcancer1@nhs.net or call 020 344 72779 or 07950 960 159. A member of our team will get back to you as soon as possible.

  • Current engagement and involvement opportunities

    We are currently looking for people affected by cancer to be involved in the following activities. Please contact us on uclh.getinvolvedwithcancer1@nhs.net or phone 020 3447 2779 or 07950 960 159 if you are interested in finding out more.

    1. North central London FIT (Faecal Immunochemical Test) Implementation Steering Group

    Colorectal cancer (also called bowel cancer) is the second most common cause of death from cancer in the UK. However, if diagnosed early enough, there's more than a 90% chance of successful treatment. Currently, people have a colonoscopy to detect possible colorectal cancer, where the bowel is examined using a camera on a flexible tube. The procedure can be uncomfortable and carries small risks. In addition, it may miss up to 10% of the cancer cases. Only about 4% of patients who undergo colonoscopy for symptoms of possible bowel cancer are diagnosed with cancer, so the majority of colonoscopies turn out to be unnecessary.

    Quantitative faecal immunochemical test (qFIT or FIT) is a new, highly accurate and non-invasive test that detects hidden blood in stool. It is also considerably less expensive than a colonoscopy – approximately £10 per test compared to up to £600 for a colonoscopy. This simple test could be used as a ‘rule-out’ test in primary care, avoiding the need for an unpleasant colonoscopy for many patients.

    The FIT test has been piloted with over 300 patients. We are now setting up a Steering Group to oversee the implementation of FIT in north central London (NCL - Barnet, Camden, Enfield, Haringey and Islington). We are looking for people affected by colorectal cancer who would like to join the Steering Group as patient/carer representatives. This is a great opportunity to make a difference to earlier diagnosis and patient experience.

    If you are interested in applying to be a patient/carer representative, please read the following information and apply by midnight Sunday 13 May.

    1. Pathway Boards and Expert Reference Groups

    We have several vacancies for people affected by cancer to join our Pathway Boards and Expert Reference Groups. You can find a list of all the vacancies below.

    Each Pathway Board looks at a specific type of cancer tumour (e.g. brain and spine, lung, colorectal and so on). They are responsible for driving improvement across the whole care pathway, from initial symptoms, through diagnosis, treatment, and living with and beyond cancer.

    Each Expert Reference Group focuses on a cross-cutting topic, such as chemotherapy, psychosocial issues, or rehabilitation. They explore opportunities to improve patient outcomes and experience, and offer expert advice to the Pathway Boards.

    If you are interested in applying to be a patient/carer representative, please read the following information and apply by midnight Sunday 13 May.

    1. Patient Experience and User Involvement Steering Group – members

    We are seeking applications from people affected by cancer who would like to join our Patient Experience and User Involvement Steering Group. You can read more about the group and its current members here.

    This group drives patient experience and user involvement work across the UCLH Cancer Collaborative, ensuring that the views of people affected by cancer are represented at the highest level.

    We want to ensure that the group is representative of the NHS Trusts in the UCLH Cancer Collaborative and the population we cover. Therefore, we would particularly welcome applications from:

    • people from Black and Minority Ethnic (BME) communities
    • people who live in the boroughs of Barnet, Enfield, Newham, Tower Hamlets and Waltham Forest
    • people who received cancer treatment from Barts Health NHS Trust, North Middlesex University Hospital NHS Trust, Princess Alexandra Hospital NHS Trust, and the Royal Free London NHS Foundation Trust.

    If you are interested in applying to join, please read the following information and apply by midnight Sunday 13 May.

  • What does joining the Patient and Carer Network involve?

    Being a member of the Patient and Carer Network (PCN) means you will receive our e-bulletin each quarter and hear about a variety of opportunities available for people with different skills, interests, and a varying amount of time to offer. From time to time, we will let you know about a range of engagement events and involvement opportunities, for example:

    • joining a one-off focus group
    • attending workshops e.g. to develop communications material
    • helping to develop patient surveys
    • helping to conduct patient surveys
    • joining a time bound steering group overseeing a project
    • supporting our community outreach and engagement plans
    • being a part of an interview panel
    • contributing to a document review group by email
    • being a member of our PE&UI Steering Group,
    • joining a Pathway Board or an Expert Reference Groups
    • sharing your experience at specific events and within teaching programmes
    • helping us reach out to seldom heard from community groups
    • coming along to our networking events for people affected by cancer
    • attending our annual conference

    If you know of friends, family, colleagues, neighbours or members of your local community who have been affected by cancer, who might be interested in our work, please let them know about our Patient and Carer Network.

    Please email uclh.getinvolvedwithcancer1@nhs.net or call 020 344 72779 if you are interested in finding our more.