UCLH Cancer Collaborative Patient Experience and User Involvement Steering Group 

The Patient Experience and User Involvement Steering Group currently has eight members. They are all people personally affected by cancer, and you can read more about their background and interests below.

If you are a patient or carer and would like to find out more about getting involved to shape cancer services, please visit our Get involved with cancer page, email uclh.getinvolvedwithcancer1@nhs.net or phone 07950 960 159 or 020 3447 2779.

  • Dr Qadir Bakhsh, vice-chair

    Treated at: Barts Health NHS Trust

    Qadir has worked on equality and diversity at a senior level within local government and the voluntary sector, as well as taking on non-executive director roles in the NHS over the past 15 years. As a non-executive director, Qadir regularly attended patient forums, patient involvement groups, community groups, faith groups, and meetings of the Council of Governors at various NHS Trusts. He has also worked as a consultant on equality, and continues to work as a freelance researcher and a chair of several voluntary sector groups, including the Refugee Advice Centre and The Engage.

    Qadir has extensive expertise in community engagement, especially working with disadvantaged groups. He is looking forward to working collaboratively to help improve patient experience and earlier diagnosis. He’s particularly interested in early diagnosis, the wider social determinants of health, and the holistic support that is available for patients and their families.

  • Alison Carter

    Treated at: Whittington Hospital NHS Trust and the Royal Free London NHS Foundation Trust

    Alison works in fashion content production at John Lewis, and has extensive experience of leading teams through change management. She writes a blog about her experiences of breast cancer and treatment. Alison supports the work of the Breast Cancer Haven, and also recently shared her experiences as a guest speaker at the Whittington's Cancer Conference in February 2018.

    Alison is interested in co-designing pathways in order to improve patients’ experiences – for example by ensuring that the process doesn’t create unnecessary anxiety, and that it provides seamless care. She’s also interested in collaborative working between the NHS and the voluntary sector, to offer patients holistic support.

  • Carol Fenton

    Treated at: Barts Health NHS Trust and Homerton University Hospital NHS Foundation Trust

    Carol began her career in nursing and oncology in the NHS, before moving onto roles in primary and community care and commissioning roles in North East London. Carol also worked for Macmillan Cancer Support for four years, as General Manager for London and the South East. Carol lives in Hackney and has extensive experience working with diverse communities and of the local health care systems and voluntary groups. Carol volunteers as a Compassionate Neighbour at St Joseph’s Hospice, and is also involved in the Social Prescribing Network at the Bromley by Bow Centre.

    Carol believes strongly in empowering people, patients, carers, volunteers and communities to be actively involved in their individual health and wellbeing and in the co-design and delivery of future health services. Carol is excited about bringing her skills and experience both personally and professionally to influence, shape and improve cancer services. She welcomes the opportunity to present the diverse views of local communities and to feedback to local networks and support groups future plans, projects and progress on a regular basis.

  • Noel Judge

    Treated at: Barking, Havering and Redbridge University Hospitals NHS Trust (BHRUT)

    Noel’s professional background is as a First Deputy Headteacher in a large secondary school academy and he served as a member of the Redbridge Local Safeguarding Children Board (LSCB). Noel is a patient partner on the Cancer Patient and Public Advisory Group (CPPAG) at BHRUT. In this role, he has been part of Macmillan quality assessment of the Radiography and Chemotherapy departments. Noel also recently joined a new Endoscopy Advisory group and a Safeguarding Policy Group both at BHRUT. He represents the anaesthetics division on the Patient Partnership Council (PPC) at BHRUT. Noel has been a member of CRASE (Colon Rectal Advice Support Education) support group at BHRUT for the past four years, where his role is to talk to and support bowel cancer patients to encourage them to join the support group. Noel is also a trained Havering Health Champion and the joint chairperson of both Chadwell and Sevenkings Safer Neighbourhood Panels. He is also a board member of the Redbridge Safer Neighbourhoods Board.

    Noel is passionate about contributing to the community and enjoys actively engaging and supporting those who have been diagnosed with cancer. Noel wants to make a positive contribution to help shape cancer services for the future, through working collaboratively, and offering constructive comments as part of a larger group.

  • Annabell Power

    Treated at: Barts Health NHS Trust

    Annabell has several years’ experience as a Sales Manager for a large academic publisher and currently lives in Hackney. She supports other people affected by cancer through various organisations, including St Joseph’s Hospice. She is also a member of a local community garden – Core Landscapes – which encourages gardening as a form of rehabilitation for people recovering from physical and mental illnesses.

    Annabell believes strongly in ensuring that patient voice drives change and service developments across cancer services, and in enabling effective and collaborative communication between patients and professionals. She is keen to use her skills and experience to help develop clear, comprehensive, accessible information for patients, and is passionate about working with services to provide adequate support and education for patients, particularly at diagnosis and when starting treatment. She has a particular interest in working with services to identify and address barriers to coordinated care across different sites, with the ultimate aim of reducing inequalities and helping services to work together more effectively.

  • Ann Robinson

    Treated at: University College Hospital London NHS Foundation Trust

    Ann is currently working in education management and coaching. She used to be the Principal of a Further Education College in London, then a Director at the Association of Colleges (AoC), where she represented colleges to government. Ann has been a board member of Middlesex University for the past 12 years.

    Ann also undertakes a number of different activities for Macmillan Cancer Support, including awareness raising work in the media. Ann believes that patients and carers can bring a unique approach to service delivery and improvement work that and is excited about joining the Steering Group to represent their views and further improve outcomes.

  • Andrew Ryder

    Treated at: University College Hospital London NHS Foundation Trust

    Andrew has worked in higher education for over 25 years as a university lecturer, and also as a consultant on economic development internationally. He was a member of the UCLH Cancer Patient and Public Advisory Group (CPPAG) for a number of years. Currently, Andrew is a patient representative with the Cancer Academy. He’s also been involved with the NHS London Leadership Academy. Through these groups, Andrew has seen how useful patient input can be in helping healthcare providers better understand patients’ concerns, and improving services in response. 

    Andrew is passionate about enabling patients to pro-actively manage their own care and treatment options, and interested in the role that good communication with professionals plays in this. He would like to see more sharing of best practice among different divisions within hospitals, as well as the development of patient-led education.

  • Declan Sheehan

    Treated at: University College London Hospitals NHS Foundation Trust and Royal Free London NHS Foundation Trust

    Declan spent almost 30 years working in the financial industry with JP Morgan and HSBC in the UK, Europe, USA and Asia. He is the Chair of the Cancer Institute Development Group at Trinity/St. James’s Hospital Dublin, and also a steering group member for the RESPECT-21 project. He’s also worked with Bloodwise on the development of Blood Cancer Connect.

    He was a patient representative on the London Cancer Haematology Pathway Board from 2013 to 2017. In this role, Declan was involved in developing a series of patient information films on common tests and procedures for blood cancers. Declan is particularly interested in improving patients’ access to information through the patient pathway, patient involvement in decision-making about treatment, and support for families and carers.

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