Dr Helen Spoudeas is a full time consultant and one of a team of six paediatric endocrinologists, appointed to a newly created 0.65 whole time equivalent consultant post in January 1999. Prior to her consultant appointment, Dr Spoudeas had eight years of general medical and paediatric experience and 15 years of paediatric endocrine speciality experience, achieving full accreditation in both specialities in 1996. She sees all types of paediatric endocrine conditions and emergencies as part of the general endocrine services at both GOSH and UCLH and has a wide practice.
Her specific interest and remit on consultant appointment was to develop the existing endocrine service to survivors of childhood cancer, especially brain tumours, at the London Centre of Paediatric Endocrinology between Great Ormond Street and University College Hospitals, into one encompassing neuro-endocrine rehabilitation, fertility and quality of life. This "split-site" centre provides a seamless age-appropriate transition service for children (under 12 years at GOSH) and young people (from 13 -25 years at UCLH) and is both a designated neuroscience and neurosurgical centre, treating one third of the nation's brain tumours, as well as a designated children's cancer centre, a quaternary referral centre for bone tumours and two dedicated adolescent units, (one for teenage cancer and one multidisciplinary).
Her appointment was innovative to a newly created post (the first of its kind in the UK), and built on her previous clinical and research commitments to children with brain tumours over a 10-year period (1989-1999) and on which her doctorate (MD) thesis (1995) was based.
Dr Spoudeas now leads the single largest national multidisciplinary neuroendocrine service supporting over 1000 children and young adults surviving brain related tumour injury, is an integral member of the age appropriate neuroncology MDT and, at the adult site, empowers and clinically supports young adults to achieve independence and employment, partnerships and parenthood through the ‘SUCCESS’ service she founded.
Dr Spoudeas is also an honorary senior lecturer in paediatric endocrinology at University College London and the Institute of Child Heath, member of the European Society of Paediatric Endocrinology (ESPE since 1990), the Children’s Cancer and Leukaemia Group (CCLG, formerly UKCCSG since 1999) and the European Children’s NeuroOncology Society (SIOP-E) specifically contributing to the endocrine outcomes of national and European cancer trials as a member of the "brain tumour" and "quality of survival" committees (since 2000).
She is the only international paediatric endocrine member of these professional oncology organisations, is the inaugural chair of the craniopharyngioma special interest group (SIG) at the brain tumour committee of CCLG (since 2005) and formally represents the paediatric endocrine societies to this body. In this capacity she is an executive member of the British Society of Paediatric Endocrinology (BSPED), nominated to represent endocrine-oncology stakeholder interests (since 2000). In this capacity she has provided expert advice to the NICE guidance on child and adolescent cancer (2005) and in 2012 to the national specialist commissioning (NCG) paediatric neurosurgery ‘safe and sustainable’ initiatives for service improvement in children with complex brain tumours.
She is also author and editor of the joint BSPED-CCLG commissioned guidance on paediatric endocrine tumours (2005) currently being revised and member of the multidisciplinary working party on fertility preservation before childhood cancer therapy (2003).
Dr Spoudeas has published her MD thesis (1995) and over 40 articles and chapters on the neuroendocrine effects of childhood brain tumours and related aspects of quality of survival and continues to be active in collaborative clinical research locally and internationally in this area.
She is a recognised international speaker in her specialist field, invited to give over 10 lectures annually to a wide variety of interdisciplinary professionals and is also an accredited educational supervisor of postgraduate paediatric trainees with 10 years experience mentoring and leading paediatric training programmes at the London Deanery and Royal College of Paediatrics and Child Health (RCPCH ) and currently supervising MsC and PhD students.
Medical Protection Society MPS 129666
Spoudeas HA. The evolution of growth hormone neurosecretory disturbance during high dose cranial irradiation and chemotherapy for childhood brain tumours. MD thesis, University of London, 1995.
Spoudeas HA. Paediatric Endocrine Tumours. A Multidisciplinary Consensus Statement of Best Practice from a Working Group convened under the auspices of the British Society for Paediatric Endocrinology and Diabetes (BSPED and the United Kingdom Children’s Cancer Study Group (UKCCSG). (October 2005; ISBN 0-9551487-0-7)