The Red Cell Network is running Patient Reported Experience Measures (PREMs) surveys for adult and paediatric patients, and parents of paediatric patients, living with sickle cell disorder and thalassaemia. These surveys will close on 14th March 2026.
Your answers help us understand the quality of care for people living with thalassaemia and sickle cell disorder, what is working well, and what needs improvement. The survey is anonymous and will not affect your care in any way.
For thalassaemia, there are 3 surveys: for adults with thalassaemia, for children and young people with thalassaemia, and for parents of children and young people with thalassaemia.
For sickle cell disorder, there are 3 surveys for each Trust within our network. Please find your Trust in the below list and complete the appropriate survey.
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Bedfordshire Hospitals NHS Foundation Trust |
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Cambridge University Hospitals NHS Foundation Trust |
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East and North Hertfordshire NHS Trust |
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East Suffolk and North Essex NHS Foundation Trust |
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James Paget University Hospitals NHS Foundation Trust |
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Norfolk and Norwich University Hospitals NHS Foundation Trust |
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North Middlesex University Hospital |
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North West Anglia NHS Foundation Trust |
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Princess Alexandra Hospital NHS Trust |
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Queen Elizabeth Hospital King’s Lynn NHS Foundation Trust |
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University College London Hospitals NHS Foundation Trust |
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West Suffolk NHS Foundation Trust |
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Whittington Health NHS Trust |
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