Guidelines for adults and paediatrics
Disclaimer: Guidelines available for download on, or linked to from, this website are for information purposes only and are not intended to inform any individual clinical decisions. The Red Cell Network (TRCN) will not accept any responsibility for the outcome of clinical decisions made as a result of reading these guidelines.
All guidelines have been peer-reviewed and agreed to be published by the relevant lead consultants in the network.
The Thalassaemia International Federation (TIF) have published the first-ever Guidelines for the Management of α-thalassaemia, which will serve as an indispensable resource for healthcare professionals, researchers, and others involved in the care of individuals with this complex, genetic blood disorder.
Over the years, the National Haemoglobinopathy Panel (NHP) has had multiple discussions during MDT and Business Operations/Governance meetings regarding the reporting and management of mortalities.
The NHP have produced a guidance document as the result of a collaborated review of the process and includes input from the National Haemoglobinopathy Registry (NHR).