Histiocytic disorders are a range of rare non-cancerous conditions. They are also called histiocytic neoplasms. They affect a type of immune cell called histiocytes. Histiocytes live in your body’s tissues and help protect you from infections while keeping your tissues healthy.
Some histiocytes can change and become cancerous. When this happens, too many abnormal histiocytes build up in your organs.
Histiocytic neoplasms may affect one area or several parts of the body. Common places they affect include the bones, lymph nodes, liver, spleen and skin.
At UCLH, we have a specialist clinic dedicated to caring for people affected by histiocytic disorders. We also work closely with the national histiocytosis advisory panel.
Dr Gohil and Dr McNamara, who both run the adult histiocytic disorder clinic at UCLH, are key members of the panel. Dr Sneha Tandon runs a specialist clinic at UCLH for teenagers and young adults who have histiocytic disorders.
- Langerhans Cell Histiocytosis
- Erdheim Chester Disease
- Rosai Dorfman Disease
- Langerhans Cell Sarcoma
- Histiocytic Sarcoma
- ALK+ Histiocytosis
You will also get support from a clinical nurse specialist. They’ll guide you through your diagnosis, treatment and follow-up care. You’ll get their contact details once you’re diagnosed. You can contact them between your hospital appointments if you have any questions or concerns.
The UCLH Macmillan Support and Information Service offers help and advice for people affected by cancer. They provide practical advice, emotional support and information. Visit their web page to find out more.
Patient contact
Other contact information
For any Haematology queries, please call the Haematology Helpline.
Haematology Helpline: 020 3447 7359 (9am - 5pm Mon-Fri, except bank holidays)
For urgent medical advice, UCLH Haematology patients may call the out of hours line. Please note this line is for UCLH patients only. Medical professionals should call the general enquiries line for any patient-related queries.
Out of Hours (Urgent Medical Advice): 07852 220900 (After 5pm Mon-Fri, weekends and bank holidays)
Address
Outpatients:
University College Hospital Macmillan Cancer Centre
Outpatient clinic
Ground Floor
Huntley Street
London, WC1E 6AG
Inpatients:
Grafton Way Building
Inpatient Wards: GWB L02 East, L02 North, L03 East, L03 North, L04 East
1 Grafton Way
London
WC1E 6AS
University College Hospital
Inpatient Ward: T16
235 Euston Road
NW1 2BU
Referral address
Histiocytosis Team
Department of Haematology
UCLH
3rd Floor West
250 Euston Road
London, NW1 2PG
Consultants
Useful links