- Getting Ready for Transition to Secondary School (GReaT)
- Tandem TSlim X2 and Control IQ technology
- Diabetes school training September 2020
- New Facebook network for diabetes (current page)
- Staying healthy this winter
- Managing diabetes at Christmas - 2020
- 'On the go’ low GI breakfast recipes
- Strike the spike
- Sleep tips for families and young people
- COVID-19 Vaccine for 12-15 year olds
- Urgent Field Safety Notice
- Talking About Diabetes (TAD)
- How are we doing? Parent and Patient Reported Experience Measure (PREM) survey
- Medtronic Diabetes - Insulin Pump events
- Changes to the Carbs & Cals app
- Moving to adult diabetes services
- Welcome to the new members of the children and young people's diabetes team
- Navigating the exam period
- Upgrading from Diasend to Glooko
- MiniMed™ insulin pump battery cap field safety notice
- MiniMed™ Mio™ infusion sets
- GReaT - Getting Ready for Transition to secondary school
- Tree of Life
- Early sensor orders and reporting faulty sensors
- Upgrading to Glooko
- Tandem T:Slim X2 Field Notices - October 2022
- Omnipod DASH Field Safety Notice
- MiniMed™ 780G Patient Webinars
- The LUCY Project
- Navigating the exam period
- Getting Ready for Transition (GReaT) to secondary school
- Sign up for our Tree of Life workshop!
- Managing diabetes at Christmas time
- MiniMed™ 780G Patient Webinars
- Meeting other young people with diabetes
- Urgent Field Safety Notice - FreeStyle LibreLink and FreeStyle Libre 3 Android apps
- Discontinuation of MiniMed™ Mio™ Infusion sets
- Urgent Field Safety Notice: FreeStyle Libre® 2 Sensors
- DiaMEETes group - sign up now!
- Medtronic Extended Wear Infusion Set (EWIS)
- School care plans
- Isabelle's story
- FreeStyle LibreLink app for iOS - Urgent Field Safety Notice
- Omnipod 5 Update
- Sign up for the next Tree of Life workshop
- Field Safety Notice – CamAPS FX app version 1.4(172) and all previous versions
- Field Safety Notice – Dana I pump (or Diabecare DANA-i) (Manufactured before October 2022)
- DigiBete Care plan training for families - Monday 11 September at 6:30pm and Wednesday 13 September at 12pm
- Diasend® no longer available
- Navigating the exam period
- Understanding your child's behaviour
- FreeStyle Libre 2 Virtual Education Sessions
- CamAPS FX Field Safety Notice
- Field Safety Notice – Medtronic Guardian 4 sensors
- The DiaMEETes group
- JDRF Type 1 Diabetes Discovery Event and Technology Exhibition
- Tandem T:slim software update
- Navigating the Exam Period
- Tree of Life
- Diabetes UK Online event - Type 1 chat: type 1 and relationships
- DiaMEETes Group
- Omnipod 5 software update – Week commencing 15 July
- School Training Day - Monday 30 September
- Early sensor orders and reporting faulty sensors
- Understanding your child's behaviour - parent group
- Tree of Life
- New Digibete E-learning package for schools
- Getting Ready for Transition (GReaT) to secondary school
- Sleep Group
- Brain Hacks Workshop
- YES Workshop - £20 incentive for young people!
- DiaMEETes Group
- Tree of Life
- Join us in recycling Novo Nordisk pre-filled pens
- Transition Group - Moving to adult diabetes services
- How to Manage a Mammoth
- Diabetes Schools Study Day
- Navigating the exam period
- Collaborate for Care: Youth ideas matter!
- Omnipod 5 and Dexcom G7
- Sleep Group
- Urgent Field Safety Notice regarding Medtronic 640 and 780 insulin pumps (Medtronic Reference FA1446)
- Understanding your child’s behaviour
- Diabetes Schools Study Day - 10 September 2025
- Tree of Life
- Getting to Grips with Anxiety - Two-part online workshop
- Tandem T-slim mobile app
- Supply and delivery of NHS funded sensors
- Tandem T:Slim – Remote Bolusing now available
- Mindful Mondays
- Changes to MyCare access for young people and their proxies
The South East Coast and London Diabetes Network is part of the Families with Diabetes National Network (FWDNN). FWDNN is a network of parent representatives from each of the eleven regional networks of the country and we are part of the Children and Young People Diabetes National Network. We are recruited by the network co-ordinators in each region and we all have children with diabetes and attend network meetings in our regions to represent the views of families living with diabetes.
We believe it is important to have ‘Family’ in our name as a diagnosis of diabetes in a child has an effect on the whole family, mothers and fathers but also brothers, sisters and grandparents. We are run independently and are managed by parents. We meet twice a year at the National Children and Young People’s Diabetes Network meeting and regularly throughout the year by Skype. FWDNN has worked closely with the National Network and helped produce the National Children and Young People’s Diabetes Network Delivery Plan 2020-25, and will continue to work closely to ensure its delivery.
Our aim is to provide a parent/carer voice, giving families and clinicians an equal voice. We hope to be able to represent a wide variety of families across all eleven regions. Families’ views are sought through a number of methods including Facebook groups for each region, local support groups and through clinics. Facebook enables us to reach families not engaged in the more formal meetings and which also allows sharing of regional and national documents. We provide a parent voice to the National Children and Young People’s Diabetes Network and share good practice between parent representatives across the regions.
The South East Coast and London Network regularly arranges family meet ups at various hospitals around London and the South East Coast. These meetings are a good place to meet other families and we have guest speakers on various topics. We have play specialists available, so it is also a good opportunity for the children to meet other children with Type 1. A favourite session at these meetings is the children’s panel, this is when we invite adults and children to ask our panel of children questions, as you can imagine children are very honest so listening to their responses is very enlightening!
Our main objective is to hear your voice, we are driven by what parents /carers want. We circulate surveys via our Facebook page, these surveys are sent out at the request of the National Network. Clinicians and network leads want to hear what parents/carers think and surveys are a good way of gathering data to help make decisions on how to deliver the best care to our children and young people.
Please join our Facebook community (Information below) so we can hear your views and you can learn about the different events in your area.
You can share your experiences and you will find useful information and details of any events in your area https://
For more details contact your parent representatives
Jenny Dias : 07989 352554 / jenny
Adrienne Burton : 07912 376406 / adrienne
Andrew Stroud : 07939 139903 / andrew.
Sharon Oliver : 07952 524660 / sharon.
Donna Williams : 07968109148 / donnasbwilliams
Or the Children & Young People’s South East Coast & London Diabetes Network Manager :
Usha Parkash on 07432 598896 / usha.
This work is being supported by the Children & Young People’s South East Coast & London Diabetes Partnership.