Diabetes doesn't have to stop your child from living life to the full.
With careful management, you can help your child to manage their condition
Learning to manage diabetes takes time, patience and effort – not to mention coping with difficult emotions after diagnosis. There are no short-cuts and it can take time to understand the condition; but we can help them stay healthy, active and happy.
Let us show you how...
- Information for young people with a new diagnosis of type 1 diabetes
- Managing food, activity and type 1 diabetes: An introduction for newly diagnosed children and families
- Under Five’s, Food, Activity and Diabetes
- What care to expect after your child has been diagnosed with Diabetes
- Video: Managing food and type 1 diabetes: a short talk for families new to diabetes
- Please download the latest patient information leaflet about remote clinics
- Setting up MyCare
- Need help with video clinics - contact a tech buddy
Exploring thoughts and feelings about diabetes
- Psychological support for children, young people and families living with diabetes factsheet
- Emotional well being with diabetes leaflet
- What young people would like everyone to know about Type 1 Diabetes
Self-referral to the psychology team
Support and opportunities to meet others
- ‘Tree of Life’ video
- DiaMEETes
- Mindful Mondays is an 8 week online group for parents of children who have a long term health condition and are under the care of UCLH.
- Getting Ready for Transition to secondary school (GReaT). The GReaT Group is for young people with Type 1 Diabetes, who are transitioning to secondary school, and their parents. The GReaT Group for 2021 will be held on Wednesday 18th August, virtually, and all those eliglible will receive an invite in the post. Click here for more information and to book your place
Understanding blood glucose levels
- Correcting a high blood glucose level factsheet
- Sick day rules – multiple daily injections factsheet
- Sick day rules – insulin pump therapy factsheet
- Making sense of your waking blood glucose measurement factsheet
- Ketones and Diabetic ketoacidosis (DKA) factsheet
- What young people would like everyone to know about Type 1 Diabetes
Pumps and devices
Essential advice and guidance from both experts and users
Please download the latest patient information leaflet about remote clinics.
Medtronic
- Understanding Carelink reports
- New Carelink Personal Upload and Install Guide 2018
- Set up/access your account
Freestyle Libre
- Set up/access your LibreView account here
- Getting started with LibreView
- Linking your LibreView account to UCLH
Dexcom
Diasend
Nutrition and exercise
Complete guide to food facts alongside practical tips
- Eating well with Diabetes
- Managing food, activity and type 1 diabetes: An introduction for newly diagnosed children and families
- What is Glycaemic Index
- Carbohydrate counting at school
- Insulin Pump Bolus Options
- Coeliac disease and diabetes factsheet
- Carbohydrate counting using cup measures
- Managing high fat and protein meals – Medtronic 640G pump
- Managing high fat and protein meals – Roche Insight pump
- Managing high fat and protein meals – Roche Combo pump
- Managing high fat and protein meals – Omnipod pump
- Managing high fat and protein meals – T-Slim pump
- Religious Fasting and Type 1 Diabetes
- Ramadan and type 1 diabetes factsheet
- Under Five’s, Food, Activity and Diabetes
- Drinking alcohol safely with Type 1 Diabetes
- Moving to seconday school
- Using Dexcom at mealtimes
- Video: Managing food and type 1 diabetes: a short talk for families new to diabetes
Apps families and young people find useful for carbohydrate counting and bolus advice
- Carbs and cals app
- My Fitness Pal app
- Diabetes M
- Diabetes M bolus advice app
- MyLife bolus advice app
Websites for further information
- Digibete
- Glycemic Index – University of Sydney
- Glycemic Index Foundation
- British Nutrition Foundation Food Explorer for recipe analysis
- Healthy eating (GOSH)
- British Dietetic Association food fact sheets
- Change 4 Life Healthy Eating
- Infant and Toddler Forum toddler portion sizes
- Infant and Toddler Forum tips on managing fussy eating
- Video – five tips for parents of fussy eaters
No-sweat guidance on how to enjoy sport and exercise
- Exercise and type 1 diabetes - Getting started advice
- Exercise and activity management - insulin pumps
- Exercise snacks
- Information for sports coaches
- Exercise and activity management - multiple daily injections
- Activity Trip planning
- Exercise and type 1 diabetes – building muscle mass
- Under Five’s, Food, Activity and Diabetes
- Duke of Edinburgh Awards
Useful websites:
- ExCarbs
http://www.excarbs.com/ - Runsweet
http://www.runsweet.com/ - Team Novo Nordisk
http://www.teamnovonordisk.com/sports-diabetes/ - The Diabetes Football Community
https://thediabetesfootballcommunity.com/
Education
All the homework you need to excel at school
- Exam guidance for children and young people with type 1 diabetes
- JDRF schools pack
- Nutrition in Schools for Teachers, Parents and Young People
- Dexcom G6 School Guide
- Diabetes UK - Diabetes in Schools
- Medtronic Minimed 780G School Guide
Care Plans
Every young person with type 1 diabetes requires an individual health care plan (IHCP) for school.
Please download and complete ONE of the following care plans depending on the diabetes management and technology used:
- School care plan INJECTIONS & DEXCOM G6
- School care plan INJECTIONS & LIBRE
- School care plan INJECTIONS
- School care plan MEDTRONIC 640G & GUARDIAN 3
- School care plan MEDTRONIC 670G SYSTEM
- School care plan PUMP & DEXCOM G6
- School care plan PUMP & LIBRE
- School care plan PUMP
- School care plan TSLIM & DEXCOM G6 - CONTROL IQ
Supporting Information
Here are the documents to support the care plan
Please download the relevant documents depending on what equipment and technology is used.
- CGM Appendix DEXCOM G6 2020
- CGM Appendix GUARDIAN 3 2020
- CGM Appendix LIBRE 2020
- INJECTING Appendix GLUGAGON
- INJECTING Appendix INSULIN
- PUMP Appendix ACCUCHEK COMBO
- PUMP Appendix ACCUCHEK INSIGHT
- PUMP Appendix MEDTRONIC 640G 2020
- PUMP Appendix OMNIPOD 2020
- PUMP Appendix TANDEM TSLIM 2020
- TESTING Appendix Accu-Chek Expert meter
- TESTING Appendix Contour Next Link meter
- TESTING Appendix Freestyle Optium Neo Ketone meter
Travel and days out
- Travelling with diabetes - fact sheet
- Customs letter – pumps (with and without CGM)
- Customs letter – injections (with and without CGM)
- Medtronic Pump Airport Security Letter
- Camp Simcha events
- Travelling with an Accu-Chek Insight Pump
- Travelling with an Accu-Chek Combo Pump
- Medtronic Travel Checklist
- Travelling with a Medtronic Pump
Websites for further information
- Travel Vaccination Clinic
- Travelling with Diabetes Advice
- Managing diabetes at festivals
- Travel advice with an insulin pump from Medtronic
- Civil Aviation Authority Advice – including link to Medical Device Awareness Card
- CAA Medical Device Awareness Card - order here
- JDRF travel
- Diabetes Travel Calculator
- Managing diabetes at festivals
Some pumps need to be removed for certain theme park rides due to the magnetic harnesses used. We recommend contacting your pump company to find out if this applies to you.
We do not supply specific letters to request queue jumping at theme parks, but if you take your last clinic with you to confirm your diagnosis of type 1 diabetes, most theme parks will provide you with ‘fast-passes’ to enable you to avoid queuing.
Advice and links
Below are some links to useful shopping sites for diabetes products. These have been suggested to us by our parents and families. If you have any useful links you would like to share here please drop us an email at cdlime@uclh.nhs.uk or cdorange@uclh.nhs.uk.
- Pump pouches
- Cool packs for insulin/pumps
- Medical alerts
- Hid-In
- Aquapac waterproof insulin pump accessories
Digibete Digibete is a video platform and social enterprise, designed to help children and their families with type 1 diabetes. It is a collection of short videos on all aspects of diabetes managements, created by young people, their families and their diabetes teams. Click the image on the left to download the full size. |
 Psychosocial Aspects of Diabetes: Children, Adolescents and Their Families (by Deborah Christie)
Latest customer review: “This book is a really good read for anyone interested in the psychosocial aspects of diabetes. I have a vested interest as my daughter has Type 1 but I am also studying and this book has been a big part of my course materials. Easily written for the non-academic, but some extremely interesting perspectives.” |
 Type 1 Diabetes in Children, Adolescents and Young Adults (by RagnarHanas)
Latest customer review: “The writer's whole approach to the subject seems not only genuinely empathetic but illuminating. This book is packed full of information in a clearly laid out informative text. He is able to deliver medical information in a concise, accessible way. And that's the thing. He explains things. He doesn't assume patients won't get it so he'll just throw in some patronising prose.” |
 Pumping Insulin: Everything You Need for Success on a Smart Insulin Pump (by John Walsh)
Latest customer review: “After over 40 years of diabetes I still learnt a great deal about the condition, and the difficulty of controlling it, and what an insulin pump can and cannot be expected to achieve. It seems to cover all aspects.” |
 Pumping Insulin: Everything You Need for Success on a Smart Insulin Pump (by John Walsh)
Latest customer reviews: "This book has been life-changing for my son & husband, both of whom are diabetic." / "Having been a diabetic for nearly 60 years this has to be the best book I've ever seen." / "This book should become the bible for any Diabetics and for people on a reduced calorie diet." |
 Lara Takes Charge( by Rocky Lang)
Latest customer reviews: "This is a great little story, and especially wonderful for my 7 year old with diabetes to show her friends and classmates." |
