Long-term follow-up (LTFU) describes the ongoing check-ups needed after treatment for cancer has been completed. The follow-up appointments provide monitoring for any health problems or emotional problems which might have been caused by previous treatment.
The service primarily caters for young people and adults treated in the paediatric cancer service at Great Ormond Street Hospital (GOSH) and young people and adults treated in the Teenage and Young Adult (TYA) service at University College Hospital. The LTFU service will accept external referrals from other specialist centres or GPs.
We operate as a unified cancer centre together with Great Ormond Street and collectively form one of the largest paediatric/adolescent oncology centres in Europe. This alliance allows for excellent patient care and the seamless and efficient transition of patients between services.
Young people who are transferring from children's to adult services are offered an appointment in the transition clinic with the lead clinical nurse specialist. After the first appointment, a plan of care is discussed and further follow-up appointments are planned in the most appropriate clinic.
Other contact information
Service manager - Deputy Divisional Manager – Nikoo Atraki
Assistant General Manager – Helen Leandersson
University College Hospital Macmillan Cancer Centre
The LTFU service at UCLH has been developed to offer specialist follow-up after childhood cancer in an age-appropriate environment. Young people and adults who were treated for all childhood cancer types are seen in the service.
Not all treatment for childhood cancer causes problems but some people do need the medical support of a number of different specialists. These include reproductive medicine (fertility), endocrinology (hormones) and nephrology (kidney) along with expert oncologists, haematologists and a clinical nurse specialist, who all have expertise in treating the long-term effects of chemotherapy, radiotherapy and surgery. Sometimes it is necessary to refer to other adult specialists and many of these specialists are available at UCLH.
There are currently over 1,000 patients who are being treated in the UCLH follow-up service.
Our service co-ordinator provides a point of contact from Monday to Friday, 9am to 5pm either by telephone or email. A member of the clinical team will discuss any treatment related medical or psychological concerns.
Additionally, the Macmillan Support and Information Centre located within the outpatient building provides support and advice on cancer-related conditions to patients and relatives.