Living with a rheumatic condition : University College London Hospitals NHS Foundation Trust

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Links and websites

Alcohol

https://www.lupusuk.org.uk/medical/young-persons-guide/alcohol-drugs/

Coping with fatigue

UCLH patient information leaﬂet – Energy and Pacing

Healthtalk – Fatigue, energy levels and sleep

https://www.versusarthritis.org/about-arthritis/young-people/managing-your-symptoms/

https://www.lupusuk.org.uk/fatigue/

Emotional support

https://www.versusarthritis.org/about-arthritis/young-people/living-with-arthritis/

https://jia.org.uk/resource/emotions-and-mental-health/

https://www.versusarthritis.org/about-arthritis/young-people/information-for-parents/

https://www.lupusuk.org.uk/lupus-and-depression/

Young minds – Looking after yourself

Healthtalk – Emotional Challenges

Healthtalk – coping with emotions

Exams and Coursework

https://www.versusarthritis.org/about-arthritis/young-people/living-with-arthritis/

Exercise

https://www.versusarthritis.org/about-arthritis/young-people/managing-your-symptoms/

https://www.lupusuk.org.uk/diet-and-exercise/

https://arthursplace.co.uk/life/body-boosters/2021/11/29/walking-can-game-changer-body/

Financial support

UCLH patient information leaﬂet - Prescription costs

https://www.versusarthritis.org/media/23173/personal-independence-payment-factsheet.pdf

https://nras.org.uk/product/personal-independence-payment/

Healthy eating

https://jia.org.uk/resource/diet/

https://www.versusarthritis.org/about-arthritis/young-people/managing-your-symptoms/

https://www.lupusuk.org.uk/diet-and-exercise/

https://arthursplace.co.uk/life/body-boosters/2021/11/18/nutritionist-answers-common-diet-questions/

Hospital appointments

https://jia.org.uk/resource/the-healthcare-team/

https://arthursplace.co.uk/life/life-hacks/2021/05/28/how-to-communicate-confidently-with-your-doctors/

Managing Pain

UCLH leaﬂet - Managing pain (https://www.uclh.nhs.uk/download_ﬁle/view/3851/2670)

https://www.versusarthritis.org/about-arthritis/managing-symptoms/managing-your-pain/

https://www.versusarthritis.org/about-arthritis/young-people/managing-your-symptoms/

https://jia.org.uk/resource/anti-inflammatories-nsaids/

https://www.lupusuk.org.uk/pain-management/

Pregnancy

https://www.versusarthritis.org/about-arthritis/young-people/managing-your-symptoms/

https://www.versusarthritis.org/about-arthritis/young-people/information-for-parents/

https://www.versusarthritis.org/about-arthritis/living-with-arthritis/pregnancy/

https://www.lupusuk.org.uk/lupus-and-pregnancy/

https://www.versusarthritis.org/about-arthritis/your-experiences/your-questions-answered/your-questions-on-family-planning-and-arthritis/

https://arthursplace.co.uk/life/project-mum/2019/04/25/dr-martin-lee-videos/

Relationships

https://www.versusarthritis.org/about-arthritis/young-people/living-with-arthritis/

https://www.versusarthritis.org/about-arthritis/young-people/information-for-parents/

School

UCLH leaﬂet - School (https://www.uclh.nhs.uk/download_ﬁle/view/3852/2670)

https://www.versusarthritis.org/about-arthritis/young-people/living-with-arthritis/

https://www.versusarthritis.org/about-arthritis/young-people/information-for-teachers/

Healthtalk – School, College and University (http://www.healthtalk.org/young-peoples-experiences/arthritis/school-college-and-university)

juvenile arthritis research toolkit

https://www.versusarthritis.org/about-arthritis/young-people/information-for-parents/

https://jia.org.uk/resource/education/

https://jia.org.uk/resource/the-night-before-the-exam/

https://jia.org.uk/resource/safe-in-school-health-conditions-in-schools-alliance-hcsa/

https://jia.org.uk/resource/individual-healthcare-plan-and-covering-letter/

https://jia.org.uk/resource/bullying/

Sleep

UCLH patient information leaﬂet - Sleep

https://www.versusarthritis.org/about-arthritis/young-people/managing-your-symptoms/

https://www.youngminds.org.uk/

https://www.versusarthritis.org/news/2022/february/top-tips-for-good-sleep/

Smoking

Smoking and Lupus

https://arthursplace.co.uk/life/body-boosters/2016/02/11/the-truth-about-arthritis-and-smoking/

https://www.versusarthritis.org/about-arthritis/young-people/information-for-parents/

https://www.lupusuk.org.uk/medical/young-persons-guide/alcohol-drugs/

Travel/holidays/festivals

https://www.versusarthritis.org/about-arthritis/young-people/living-with-arthritis/

Understanding medication

https://www.versusarthritis.org/about-arthritis/treatments/

https://jia.org.uk/resource/medicines-in-juvenile-idiopathic-arthritis/

https://www.lupusuk.org.uk/treatments/

https://www.versusarthritis.org/about-arthritis/conditions/juvenile-idiopathic-arthritis/

https://arthursplace.co.uk/life/arthritis-facts/2019/05/01/new-guide-arthritis-treatments/

University

https://www.versusarthritis.org/about-arthritis/young-people/living-with-arthritis/

https://www.lupusuk.org.uk/studying-with-lupus/