Information alert

If you need a large print, audio, braille, easy-read, age-friendly or translated copy of this page, email the patient information team at uclh.patientinformation@nhs.net. We will do our best to meet your needs.

There is a lot of information on the internet; some of the stuff you find might not always be reliable so try to use websites you can trust.

Here are some websites that have been recommended by other young people with arthritis and the Rheumatology team but there are lots more!

UCLH cannot accept responsibility for information provided by external organisations.

The UK's largest charity dedicated to supporting people with arthritis.

  • Fun events and workshops for young people
  • A free helpline - 0800 5200 520
  • Information on living with a rheumatoid condition
  • Short videos of young people’s stories
  • Get involved in research and campaigns

www.versusarthritis.org

“Informative and concise and there is information on so many different aspects of arthritis”

An online magazine and social network for young people with arthritis.

  • Many articles relating to arthritis
  • Facts about arthritis
  • Helpful tips for dealing with everyday life known as ‘life hacks’
  • Real life stories
  • Online discussion group’s

www.arthursplace.co.uk

“Great advice regarding the practical side of living with arthritis”

A ‘virtual’ centre that carries out research with young people with rheumatic conditions.

  • Information about juvenile arthritis, lupus, dermatomyositis and treatments
  • Tips and advice given by young people via videos
  • Informative videos given by health professionals
  • Opportunity to get involved in research

adolescent-rheumatology.uk/

A charity working with UCL hospital dedicated to supporting young people who are forced to take time out from school or college due to their medical condition.

They offer:

  • Interactive group-based workshops
  • One to one mentoring
  • Tutoring in person or online

www.brightfuturesuk.org
 

“The best thing about reading stories online was seeing that I wasn't alone, I wasn't the only one with JIA.”

Clare, diagnosed with JIA aged 13 years

“You can come across a lot of information using a search engine so it’s good to know some websites that have reliable information but also ones that other people with the same condition use so you know it is good.”

Steph, diagnosed with JIA aged 5 years

Direct tel: 020 3447 9215

Switchboard: 020 3456 7890

University College London Hospital Adolescent Rheumatology Clinic Rheumatology Department

3rd Floor Central, 250 Euston Road London NW1 2PQ

Email: uclh.rheumatology@nhs.net

Services


Page last updated: 12 December 2024

Review due: 01 May 2021