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            • Dr Gill Gaskin, medical director, digital healthcare
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            • Dr Charles House, medical director, medicine board
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          • Non-executive directors
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            • Stuart Davies
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          • Staff governors
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            • Anna Collinson, staff governor
            • John Duncan, staff governor
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            • Clementine Johnson, staff governor
          • Stakeholder governors
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            • Jo Baktis, appointed stakeholder governor for Friends of UCLH charity
            • Satnam Gill, appointed stakeholder governor for Islington Council
            • Dominique Allwood, appointed stakeholder governor for UCLPartners
            • Hazel Genn, appointed stakeholder governor for University College London
            • Lotis Bautista
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            • Joy in Creativity: Annual Staff & Volunteer Exhibition 2025
            • Where the Sky Meets the Sea (2025)
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            • Inheritance: an exhibition by Jill Mueller & Paloma Tendero (2025)
            • Sharing is Caring by Artbox London (2024)
              • Sharing is Caring by Artbox London (2024)
              • Sharing is Caring Engagement Workshop
            • Staff Art Exhibition (2024)
            • Christine Felce: Activist Alphabet (2024)
            • Homelands: An Exhibition of Landscapes (2024)
            • Headway East London: Differently Various (2024)
            • Daniell Regan: What do you, we, I see? (2022)
            • Down The Garden Path (2023)
            • Staff & Volunteer Art Exhibition (2023)
            • NHS75 Exhibition (2023)
            • Staff & Volunteer Art Exhibition (2022)
            • Sense of our Selves & Hidden Reflections (2021)
            • Art in UCLH's Grafton Way Building
            • Caroline Walker: Birth Reflections (2022)
            • Fragments & Visibility (2022)
            • North London Printmakers: Art of Happiness (2022)
            • Health and the Climate and Ecological Emergency Exhibition
            • Tom Pilston: One Year On (2020)
            • Platform Black: Rest and Repair (2021)
            • Paintings in Hospitals: The Help Portfolio (2021)
            • Outernet London: Who cares for Camden? (2023)
            • View all
            • Innovative new exhibition at UCLH says ‘Deaf people can do anything’
          • Art for the Hospital Environment
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      • Cancer services
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            • Why work as a Cancer Nurse at UCLH?
            • Meet our matrons
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            • Our departments
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              • Ambulatory Care - Floor 2 - Cancer Centre
              • Cancer Central Venous Access Team
              • Chemotherapy floor 2 - Cancer Centre
              • Chemotherapy Team (Inpatients)
          • Macmillan Support and Information Service
            • Macmillan Support and Information Service
            • Meet the Macmillan Support and Information Service team
            • Macmillan Support and Information Service news
              • Macmillan Support and Information Service news
              • Transforming the everyday into something beautiful: How origami can help encourage self-care – by Lizzie Burns, creative specialist.
              • Adapting the wig service during the COVID-19 pandemic - by Nicola Panara
              • Coping with loneliness - by Emma Breger, Support and information specialist
              • Macmillan Support and Information Service launches a new online wellbeing programme for people affected by cancer or a blood condition
              • Physical activity group challenge launches on 16 June
              • Support and information for carers - by Lallita Carballo, Clinical Lead and Head of the Macmillan Support and Information Service
              • Macmillan Support and Information Service hosts its first twitter chat on cancer-related fatigue
              • UCH shortlisted for Patient Experience Network National Award
              • Self care week, 15 to 21 November
              • New government support for energy bills. What does it mean? - by Jelena Nenadic, welfare and benefit advisor
              • Young Tongues – a global, peer-to-peer support group for people who have tongue cancer
              • Macmillan Support and Information Service celebrates its 10th anniversary
              • UCLH cancer services gains PIF TICK accreditation to become a ‘trusted information creator’
              • UCLH Macmillan Support and Information Service hosted a Macmillan coffee morning on Friday 29 September
              • UCLH Macmillan support and information specialists shortlisted for an award
              • New lung cancer support group launched this month
              • NEW! Understanding lymphoedema workshop
              • NEW Mesothelioma support group
              • Need support to stay independent?
              • Origami club
              • Macmillan coffee morning at the UCH Macmillan Cancer Centre
              • New chair-based exercise class
              • Improve your sleep workshop
              • Diet and cancer talk
              • NEW: Helpful videos about managing common cancer treatment side effects
              • Feeling exhausted? Join our talk on managing your cancer-related fatigue   
              • We’ve been awarded the Macmillan Quality Environment Mark (MQEM)
              • We've been reaccredited with the PIF TICK!
              • Active movement talk
              • Connecting through coffee: UCLH Macmillan Support and Information Service launches regular meet-ups
            • Macmillan Support and Information Service events
            • Support and information for people affected by cancer or a blood condition
            • Wellbeing activities for people affected by cancer or a blood condition
            • Support groups for people affected by cancer or a blood condition
            • Welfare and benefits advice for people affected by cancer or a blood condition
              • Welfare and benefits advice for people affected by cancer or a blood condition
              • Welfare and benefit advice
            • Wig and scarf tying advice
              • Wig and scarf tying advice
              • Wig and scarf tying advice
            • Complementary therapies for people with cancer or a blood condition
              • Complementary therapies for people with cancer or a blood condition
              • Complimentary therapies
            • Diet and nutrition advice for people affected by cancer or a blood condition
              • Diet and nutrition advice for people affected by cancer or a blood condition
              • Diet and nutrition
            • Health and wellbeing resources for anyone affected by cancer or a blood condition
            • Organisations providing further support to anyone affected by cancer or a blood condition
            • Prehabilitation - preparing for your cancer treatment
            • Managing cancer treatment side effects videos
          • Lymphoedema service
          • Palliative care
            • Palliative care
            • Transforming End of Life Care Team
          • Pharmacy and medicines management
          • Psychological and emotional care for people affected by cancer or a blood condition
            • Psychological and emotional care for people affected by cancer or a blood condition
            • Psychological and emotional care
        • The Cotton Rooms
        • UCLH Charity Cancer Fund
        • Blood cancers and conditions (clinical haematology)
          • Blood cancers and conditions (clinical haematology)
          • Blood conditions and services
            • Blood conditions and services
            • Red cell conditions and services
              • Red cell conditions and services
              • Red cell and iron disorder services
              • Sickle cell disorder
              • Thalassaemia
              • Anaemia and abnormal blood counts
              • Red Cell Network
            • Haemostasis and thrombosis
              • Haemostasis and thrombosis
              • Anticoagulation
              • Thrombotic Thrombocytopenia Purpura (TTP)
                • Thrombotic Thrombocytopenia Purpura (TTP)
                • What is Thrombotic Thrombocytopenia Purpura (TTP)?
                • Diagnosing Thrombotic Thrombocytopenia Purpura (TTP)
                • Treating Thrombotic Thrombocytopenia Purpura (TTP)
                • The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry
                  • The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry
                  • ADAMTS13 Testing
                  • Contact the UK TTP registry
                • Thrombotic Thrombocytopenic Purpura (TTP) Network
                • ADAMTS13 Testing
              • Haemophilia and acquired bleeding disorders
                • Haemophilia and acquired bleeding disorders
                • What are haemophilia and acquired bleeding disorders?
                • Diagnosing haemophilia and acquired bleeding disorders
                • Treating haemophilia and acquired bleeding disorders
            • Diagnostic haematology (blood cancer and conditions)
              • Diagnostic haematology (blood cancer and conditions)
              • Cancer clinical trials
            • Stem cell and bone marrow transplants (BMT) 
            • Blood transfusion
            • Cellular Therapy
            • Histiocytic Disorders
            • CAR T-cell Therapy
          • Patient information films - blood conditions
          • Meet the blood conditions team
          • Blood conditions research
          • Blood conditions support services
          • Blood conditions - patient experiences
            • Blood conditions - patient experiences
            • David's Story (Chronic Lymphocytic Leukaemia)
            • Suraiya’s Story (Thalassaemia)
            • Mohammed's Story (Aplastic Anaemia and Acute Myeloid Leukaemia)
            • Emily's Story (Acute Myeloid Leukaemia)
          • Blood conditions referrals
          • Contact the blood conditions team
            • Contact the blood conditions team
            • Blood conditions and services
            • Macmillan Support and Information Service
            • Contact the UCLH Patient Advice and Liaison Service (PALS)
            • Change or cancel your appointment
          • Blood conditions links
        • Ambulatory care service for adults with cancer
        • Breast cancer
          • Breast cancer
          • Breast cancer follow up
        • Cancer clinical trials
          • Cancer clinical trials
          • Learn about clinical trials
          • Taking part in a clinical trial
          • Meet the research team
          • Contact details
        • Central Venous Access (CVA)
        • Chemotherapy
        • Children and young persons cancer
        • Clinical haematology (blood diseases)
        • Colorectal cancer
          • Colorectal cancer
          • Bowel cancer screening
          • Anal cancer
          • Bowel cancer
        • Follow ups (cancer)
        • Gall bladder
        • Gastric and oesophageal cancers
          • Gastric and oesophageal cancers
          • Meet the Oesophageal and gastric cancer teams
          • Oesophageal and gastric cancer patient experiences
            • Oesophageal and gastric cancer patient experiences
            • Deborah's story (oesophageal cancer)
            • Mike's story
          • Patient information - Oesophageal and gastric cancer
          • Oesophageal and gastric cancer support services
          • Oesophageal and gastric cancer research
          • Oesophageal and gastric cancer links
          • Upper Gastrointestinal (GI) Service
          • Oesophageal Cancer patient information videos
          • Gastric (stomach) cancer
            • Gastric (stomach) cancer
            • What is gastric cancer?
            • Diagnosing gastric cancer
            • Treating gastric cancer
          • Gastro-intestinal stroma tumours
            • Gastro-intestinal stroma tumours
            • Diagnosing GI stroma tumours
            • Treating GI stroma tumours
          • Oesophageal (gullet) cancer
            • Oesophageal (gullet) cancer
            • What is oesophageal cancer?
            • Diagnosing oesophageal cancer
            • Treating oesophageal cancer
        • Gynaecological oncology
          • Gynaecological oncology
          • Endometrial cancer
          • Ovarian cancer
          • Uterine cancer
          • Vaginal cancer
          • Vulval cancer
          • Womb cancer
        • Head and Neck Cancer
          • Head and Neck Cancer
          • Types of Head and Neck Cancer
            • Types of Head and Neck Cancer
            • Mouth cancer (oral cancer)
            • Throat (pharynx) cancer
            • Hypopharyngeal cancer
            • Nasopharyngeal cancer
            • Oropharyngeal cancer
            • Laryngeal (larynx) cancer
            • Salivary gland cancer
            • Nasal (nose) and sinus cancer
            • Sarcoma of the head and neck
            • Thyroid cancer
          • Diagnosis and treatment
          • Meet the head and neck cancer team
          • Frequently Asked Questions (FAQs)
          • Support services - head and neck cancer
            • Support services - head and neck cancer
            • Physiotherapy and Occupational Therapy for Head and Neck Cancer
            • Head and Neck Dietitians
          • Patient experiences
            • Patient experiences
            • Gloria's story (Laryngeal cancer)
            • Stuart's story (Mouth cancer)
            • Judy's story (Sarcoma)
          • Research
          • Your London Cancer Journey
          • Useful links and external information
          • Head and Neck Centre
          • Speech and language therapy service head and neck cancer
        • Hepato Pancreato Biliary Cancers (liver, pancreas, gall bladder and bile duct)
          • Hepato Pancreato Biliary Cancers (liver, pancreas, gall bladder and bile duct)
          • Liver cancer
          • Pancreatic cancer
        • HIV related cancers
        • Lung cancer
          • Lung cancer
          • Lung Cancer Screening
        • Long-term-follow-up (LTFU): Late effects of treatment for cancer or a blood condition
        • Proton Beam Therapy (PBT)
          • Proton Beam Therapy (PBT)
          • Proton Beam Therapy explained
          • Proton Beam Therapy services for children and young people
            • Proton Beam Therapy services for children and young people
            • Meet Prescilia - one of our first proton beam therapy patients
          • Our team
          • Facilities and equipment
          • Support services
          • Proton Beam Therapy (PBT) in pictures
        • Radiotherapy
          • Radiotherapy
          • What is radiotherapy?
          • Radiotherapy services team
          • Radiotherapy department and facilities
          • Radiotherapy patient information
          • Radiotherapy treatment options and equipment
            • Radiotherapy treatment options and equipment
            • Linear Accelerators (Photons)
            • Proton Beam Therapy (PBT)
            • Superficial treatment
            • Brachytherapy
            • Molecular radiotherapy
          • Radiotherapy support services
          • Radiotherapy services for children and young people
        • Sarcoma (London Sarcoma Service)
          • Sarcoma (London Sarcoma Service)
          • About us
            • About us
            • Royal National Orthopaedic Hospital (RNOH)
            • University College London Hospitals (UCLH)
            • Other Sites
          • News
            • News
            • Welcome to the new London Sarcoma Service website
              • Welcome to the new London Sarcoma Service website
              • RNOH wins at NOA Awards 2023!
            • Investing in the future
            • SCOOP Award
            • Desmoid telephone clinic
            • Scales Prize Winner 2019-20: Helen Seaman MSc student from UCL, RNOH Sarcoma Unit and Therapies department
            • Edward Showler Foundation and UCL partner to accelerate research into clear cell sarcoma
            • RNOH Health and Wellbeing Information and Support Sessions
            • Can you help us to improve our service?
            • HOPE Programme (Help Overcome Problems Effectively) at Royal National Orthopaedic Hospital
            • New Macmillan Highly Specialist Physiotherapist at RNOH
            • EMSOS 2022
            • National Sarcoma Educational Programme - for healthcare professionals
            • Sarcoma Awareness Month
              • Sarcoma Awareness Month
              • Sarcoma Awareness Month
            • EMSOS London 2022
            • Sarcoma UK-funded research demonstrates the importance of sarcoma specialist centres
            • RNOH CNS & AHP Team win Macmillan Professionals Excellence Award!
            • RNOH WINS PHYSIOTHERAPY EXCELLENCE AWARD
            • EMSOS 2022
            • South East Regional Sarcoma CNS and AHP Meeting
            • TYA Cancer Awareness Month - Q&A Session with Dr Strauss
            • An Ambulatory Care Approach to Delivery of Chemotherapy for Teenage and Young Adult Sarcoma Patients
            • Goodbye and Good Luck Dr Seddon!
            • SARCOMA AWARENESS MONTH 2023
            • Congratulations Professor Strauss!
            • Sarcoma Awareness Month Team Picnic
            • RNOH Cuppa and Cake Event raises £428
            • Sarcoma Awareness Month Stall
            • The London Sarcoma Strategy Day
            • RNOH wins at NOA Awards 2023!
            • New hub and spoke GP urgent referral process for adult soft tissue sarcoma
            • CTOS Dublin 2023
            • London Sarcoma Support Group
            • Congratulations to Anne McTiernan and Jo Coleman on winning Sarcoma UK’s inaugural Shining Star award
            • Congratulations Dr Vasilios Karavasilis
            • Fundraising for RARE Cancer
            • Surgeon of the Year
            • Wood Green Community Diagnostic Centre (prior to a suspected cancer referral)
            • Additional Sarcoma diagnostic ‘spoke’ goes live at Barts Health
            • Pilot of the Virtual HOPE [Help Overcome Problems Effectively] Programme with Sarcoma Cohort at RNOH receives commendation at international meeting
            • LSS presentation at Connective Tissue Oncology Society meeting in San Diego
            • National Study Day for Sarcoma - May 2025
            • Improving the Biopsy Pathway for Sarcoma Patients: A Quality Improvement Project
            • Spotlight on Sarcoma Day 2025
            • London Sarcoma Service 'Away Day'
            • New Referral Process for RNOH
          • Contact us
            • Contact us
            • Royal National Orthopaedic Hospital
            • University College London Hospital
          • Sarcoma patients
            • Sarcoma patients
            • What is sarcoma?
            • Diagnosing sarcoma
            • Treating sarcoma
              • Treating sarcoma
              • Surgery
              • Radiotherapy
              • Chemotherapy
              • Shared Care
              • Interventional Therapies
              • Palliative Care
              • Proton Beam Therapy (PBT)
            • Follow Up
            • Rehabilitation
              • Rehabilitation
              • Multidisciplinary Rehabilitation Team
                • Multidisciplinary Rehabilitation Team
                • Occupational Therapists
                • Physiotherapists
                • Dietitians
                • Social Workers
                • Orthotists
                • Prosthetists
              • Rehabilitation at RNOH
            • Support Services
            • Patient Information
              • Patient Information
              • RNOH leaflets and videos
              • UCLH information and videos
              • Sarcoma support groups
              • Financial support
              • Useful sarcoma links
              • Patient support videos
            • Personalised Cancer Care
              • Personalised Cancer Care
              • Holistic Needs Assessment & Care Plan
              • Treatment Review
              • Health & Wellbeing Information and Support
                • Health & Wellbeing Information and Support
                • Psychological & Emotional Support
                • Keeping Active
                • Staying Healthy
                  • Staying Healthy
                  • Smoking
                  • Alcohol
                  • Skincare
                  • Healthy Eating
                • Patient Information
                • Fatigue
                • Return to work
                • Driving
                • HOPE course
              • Cancer Care Review
          • Sarcoma teams
            • Sarcoma teams
            • Abdominal sarcoma team
            • Bone and soft tissue sarcoma core team
            • Breast sarcoma team
            • Gynaecological sarcoma team
            • Head and neck sarcoma team
            • Peripheral nerve sarcoma team
            • Skin sarcoma team
            • Spinal sarcoma team
            • Thoracic sarcoma team
            • Nursing team
            • Administrative team
            • Our Partners
          • Sarcoma research and innovation
            • Sarcoma research and innovation
            • Genomics
              • Genomics
              • The 100,000 Genomes Project
              • Whole Genome Sequencing
              • GeCIPing Sarcoma
              • Tom Prince Osteosarcoma Research Project
              • Genomics of Malignant Peripheral Nerve Sheath Tumour (GEM) Consortium
            • Clinical Trials
              • Clinical Trials
              • Currently open trials
              • Recently closed trials
            • Survivorship and Rehabilitation Research Programme
              • Survivorship and Rehabilitation Research Programme
              • Current research projects
              • Closed research projects
            • Service Evaluations and Audits
            • Recent Publications
            • Conference Presentations and Posters
            • Successful Grants and Funding Proposals
          • Sarcoma referrals
            • Sarcoma referrals
            • GPs
            • Hospital clinicians
            • Private patients
            • Second opinions
        • Skin cancer
        • Urological cancers
          • Urological cancers
          • Urological cancer types
          • About the urological cancers team
          • Urological cancers research
          • Support services - urological cancers
          • Urological cancers referrals
          • Other sources of support and information
          • Bladder cancer
            • Bladder cancer
            • What is bladder cancer?
            • Diagnosing bladder cancer
            • Treating bladder cancer
          • Kidney cancer
          • Penile (penis) cancer
            • Penile (penis) cancer
            • Diagnosing penile cancer
            • Treating penile cancer
            • Follow-up care and support
          • Prostate cancer
            • Prostate cancer
            • Diagnosing and staging prostate cancer at UCLH
            • Treating prostate cancer
            • Prostate cancer follow up care and support
            • Prostate cancer videos
          • Testicular cancer
            • Testicular cancer
            • What is testicular cancer?
            • Diagnosing testicular cancer
            • Treating testicular cancer
            • Meet the testicular cancer team
        • SUMMIT study
        • Brain Tumour Service (Neuro-Oncology)
        • Contacting cancer services
          • Contacting cancer services
          • Change or cancel your appointment
          • Urgent suspected cancer referrals
          • A-Z of cancer services
        • Getting to your cancer appointment
          • Getting to your cancer appointment
          • University College Hospital
          • University College Hospital Macmillan Cancer Centre
          • University College Hospital Grafton Way Building
          • University College Hospital at Westmoreland Street
          • National Hospital for Neurology and Neurosurgery
        • Enhanced Supportive Care
        • Bolus: education deliver stat Podcast
      • Cardiac services
        • Cardiac services
        • Cardiac imaging
        • Cardio-oncology
        • Cardiology outpatients
        • Cardiovascular health and rehabilitation service
        • Electrophysiology (arrhythmia services)
        • General and Interventional cardiology
        • Grown up congenital heart disease (GUCH)
        • Heart failure service
        • Inherited cardiovascular disease (cardiomyopathy)
        • Rapid access chest pain clinic
        • Thoracic surgery
        • Structural intervention
        • Cardiac surgery
      • Children and young people's services
        • Children and young people's services
        • Contact children and young people's services
        • How to refer - children and young people's services
        • Adolescent and young adult rheumatology
          • Adolescent and young adult rheumatology
          • Our Rheumatology Team
          • What is rheumatology?
          • Living with a rheumatic condition
          • Transition from another hospital
          • Frequently Asked Questions (FAQs)
          • Self injection Video Guides
          • Rheumatology research
        • Children and young people's allergy service
          • Children and young people's allergy service
          • Preparing for your appointment
          • During your appointment
          • Skin prick testing
          • Parent and child experience
        • Children's Female Genital Cutting / Mutilation (FGC/M) service
        • Children and young persons cancer
        • Children and young people's diabetes
          • Children and young people's diabetes
          • What is diabetes?
          • Diabetes blog, news and updates
            • Diabetes blog, news and updates
            • Getting Ready for Transition to Secondary School (GReaT)
            • Tandem TSlim X2 and Control IQ technology
            • Diabetes school training September 2020
            • New Facebook network for diabetes
            • Staying healthy this winter
            • Managing diabetes at Christmas - 2020
            • 'On the go’ low GI breakfast recipes
            • Strike the spike
            • Sleep tips for families and young people
            • COVID-19 Vaccine for 12-15 year olds
            • Urgent Field Safety Notice
            • Talking About Diabetes (TAD)
            • How are we doing? Parent and Patient Reported Experience Measure (PREM) survey
            • Medtronic Diabetes - Insulin Pump events
            • Changes to the Carbs & Cals app 
            • Moving to adult diabetes services
            • Welcome to the new members of the children and young people's diabetes team
            • Navigating the exam period
            • Upgrading from Diasend to Glooko
            • MiniMed™ insulin pump battery cap field safety notice
            • MiniMed™ Mio™ infusion sets
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            • Sign up for our Tree of Life workshop!
            • Managing diabetes at Christmas time
            • MiniMed™ 780G Patient Webinars
            • Meeting other young people with diabetes
            • Urgent Field Safety Notice - FreeStyle LibreLink and FreeStyle Libre 3 Android apps
            • Discontinuation of MiniMed™ Mio™ Infusion sets
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            • DiaMEETes group - sign up now!
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            • Diabetes UK Online event - Type 1 chat: type 1 and relationships
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            • Patient story - Jeanann Doyle
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    Sickle cell disorder is the most common genetic (inherited) disorder in the United Kingdom.

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