Adult cerebral palsy and neuro-disability service : University College London Hospitals NHS Foundation Trust

This page has been written by the adult cerebral palsy and neuro disability team at the National Hospital for Neurology and Neurosurgery (NHNN).

It is intended for patients, their family and carers who have been referred to our service. It is not intended to replace discussion with your consultant.

If you have any questions please do not hesitate to contact a member of our team, who will be happy to answer them for you.

The type and severity of symptoms can vary widely and may change over time.

Symptoms can include:

Learning disability
Behavioural, emotional and mood issues
Speech difficulties
Epilepsy
Swallowing difficulties, drooling
Visual, hearing impairments
Spasticity, spasms
Weakness of the arms and/or legs
Uncontrolled movements
Walking difficulties
Chronic pain
Sleep disorders
Bladder, bowel issues

Help Bridge the gap during transition from paediatric to adult services.
Offer Specialist Multi-disciplinary reviews tailored to your needs.
Provide a long term point of contact for any concerns or queries.
Help co-ordinate your care with other community services, specialist centres and healthcare professionals.

Please bring the following to your clinic appointment:

A list of all the medications you are taking (whether prescription, over the counter, herbal, homoeopathic or traditional, vitamins and supplements).
Your mobility aids or splints.
Relevant letters from other medical services.
Your current contact details and GP details.
A list of the names and contact details of health care professionals currently involved in your care.

You are welcome to bring someone with you to the appointment for support.

The assessment will be carried out by members of the multidisciplinary team, of whom there could be a:

Consultant neurologist
Consultant in rehabilitation medicine
Psychologist
Physiotherapist
Clinical nurse specialist
Speech and language therapist
Occupational therapist

The multidisciplinary team can then offer advice regarding a comprehensive management plan.

You and your GP will receive a detailed letter about the next steps of your management plan following the assessment. We will also copy the letter to any other healthcare professionals involved in your care; please let us know if you do not want the letter to be shared with them.

Our service is able to offer multidisciplinary, nurse led telephone or individual therapy appointments as required.

By Public Transport

Euston, King’s Cross and St Pancras rail stations are all approximately 15 minutes’ walk from the hospital and have step free access. The nearest tube stations are Russell Square (Piccadilly Line) and Holborn (Central and Piccadilly Lines).

If you need assistance to plan or make a journey the National Rail Enquiries website and Transport for London journey planner provide information on the support available.

The following buses stop nearby:

Southampton Row - 59, 68, 91, 168, 188, 501

Theobalds Road - 19, 38, 55, 243

By Car

Please note: Parking spaces in the area can be difficult to find.

Parking – public meter bays in Queen Square and Great Ormond Street. The NCP underground car park is located at the Brunswick Square.

Normal blue badge restrictions apply in Queen Square and streets close to the square. Please check the restrictions of your badge within Camden. There are three disabled bays in Queen Square.

For information on parking in the areas surrounding the National Hospital for Neurology and Neurosurgery please visit the Parkopedia website.

If you are driving please be aware that the National Hospital for Neurology is within the congestion charge and the ultra-low emissions zones. Find out more on the TFL website.

Hospital Transport

To book transport for your first visit, please request your GP to phone the UCLH transport team to complete a travel assessment form.

For subsequent appointments please phone the UCLH transport team to book directly.

Transport Department

Telephone: 020 3456 7010 (Mon - Fri 9am-5pm)

Email: uclh.transport.department@nhs.net

Reclaiming Transport Fares

If you are in receipt of benefits you may be entitled to reclaim transport fares when visiting the hospital for an appointment. Please ask the clinic staff for an attendance form and take this to the appropriate hospital's Cashiers Office. Reimbursement can be made at the time of your visit if you can produce your benefit book. Please ask in your appointment if you require further information.

For more information about travelling to your appointment, visit the National Hospital for Neurology and Neurosurgery service page.

There is a water fountain in the waiting area
Disabled toilets. If you need changing plinths or hoist please contact us directly.
Wheelchair accessible waiting area
There are cafés on site on the ground floor of Royal London Hospital for Integrated Medicine and the lower ground floor of the Chandler Wing, NHNN.
Interpreters can be booked in advance. Please let us know if you require an interpreter for your clinic appointment.

UCLH is a teaching Trust, and you may be asked if medical or nursing students can observe or assist with your care.

We are also a major centre for medical research. If you are interested in taking part in research projects, ask the person who is caring for you.

If you do not wish to take part in teaching of students and/or research, please tell us when you arrive. Not taking part in teaching or research will not harm your care.

Adult Cerebral Palsy and Neuro-disability service

Direct line: 020 3448 3112

Office hours are 8.30- 16.30 Monday to Friday.

If there is no one available please leave a message on the answer phone/ voicemail and your call will be returned as soon as possible. This line is confidential.

If your query is urgent please contact your GP.

Team email: uclh.cpteam@nhs.net

Address:

The cerebral palsy and neuro-disability team

National Hospital for Neurology and Neurosurgery, Box 113, Queen Square, London, WC1N 3BG

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