Information alert

If you need a large print, audio, braille, easy-read, age-friendly or translated copy of this page, email the patient information team at uclh.patientinformation@nhs.net. We will do our best to meet your needs.

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This leaflet tells you how we care for someone when we think they are close to death

End_of_life_care_EasyRead_2.png We will always take care of your loved one with respect and kindness
End_of_life_care_EasyRead_3.png You may already know that your loved one is dying, or this news might come as a shock
End_of_life_care_EasyRead_4.png We will talk with you and your loved one to keep you informed
End_of_life_care_EasyRead_5.png We will make a care plan with you, focusing on your wishes and those of your loved one
End_of_life_care_EasyRead_6.png Feel free to ask any of our staff about any worries at any time - we are here to support you
End_of_life_care_EasyRead_.png We will offer you a swan symbol for the door or curtain to remind everyone to be extra sensitive
End_of_life_care_EasyRead_8.png If your loved one has shared their wishes for their final days, please let us know
End_of_life_care_EasyRead_9.png Nurses will tell you what is possible if you want to stay with your loved one during their last days
End_of_life_care_EasyRead_10.png Some people know where they want to spend their final days – it could be at home, in a hospital or in a hospice
End_of_life_care_EasyRead_11.png It may be that your loved one is too unwell to be moved from hospital – we will do our best to meet their wishes
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Care

End_of_life_care_EasyRead_13.png It’s normal for a dying person not to want any food and drink – we will help them to eat and drink for as long as they want
End_of_life_care_EasyRead_14.png If they can’t drink, we will keep their mouth moist and comfortable – if you want, nurses can show you how to do this
End_of_life_care_EasyRead_15.png Giving fluids by a drip can have side effects – we will talk about what’s best with you and your loved one
End_of_life_care_EasyRead_16.png You might notice their breathing looks different and that it becomes noisy
End_of_life_care_EasyRead_17.png This is not usually painful, but if you think they are upset by it, please let the staff know
End_of_life_care_EasyRead_25.png We may stop giving medicines or switch to injections instead of pills
End_of_life_care_EasyRead_19.png Pain usually doesn't get worse when someone is dying, but their breathing might change – we can help with any pain or breathing issues
End_of_life_care_EasyRead_20.png We may use a special pump to give medicine under the skin if needed
End_of_life_care_EasyRead_21.png To avoid disturbing them, we may stop tests and observations
End_of_life_care_EasyRead_22.png We’ll turn them in bed to stop pressure ulcers
End_of_life_care_EasyRead_23.png They may become drowsy and sleep a lot – they may still sense your presence, voice and touch
End_of_life_care_EasyRead_24.png Let us know if there’s anything else that may comfort your loved one, like music
End_of_life_care_EasyRead_25.png If they seem restless, we may be able to help them by giving medicines
End_of_life_care_EasyRead_26.png If you’re worried that your loved one seems distressed, tell us right away
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Faith based support

If you or your loved one would you like to see a chaplain from any faith, let us know and we can arrange it

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University College hospital

The multi-faith chaplaincy is on the ground floor podium

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National Hospital for Neurology and Neurosurgery

The chapel with multi-faith facilities is in the Albany Wing

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University College Hospital at Westmoreland Street

The multi-faith room is opposite the main reception

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University College Hospital Grafton Way Building

The Muslim prayer room and multi-faith Oasis Room are on the ground floor

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After death

Your loved one might be registered as an organ or tissue donor – we understand this can be a difficult time to think about this

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Organ and tissue donation

This is done with great respect and care for the patient and their family

End_of_life_care_EasyRead_34.png Donation will not stop you from saying goodbye or affect funeral arrangements
End_of_life_care_EasyRead_35.png Organ donation can sometimes happen if a person dies in a critical care ward and is on life support
End_of_life_care_EasyRead_36.png We can provide a specially trained nurse to talk about this with you and offer support
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Tissue donation

This can be done after death – usually within 24 to 48 hours after someone has died

End_of_life_care_EasyRead_38.png If you want to know more about tissue donation scan the QR code on the left
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Or click on the link below to watch the video

NHS guide to tissue donation

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If tissue donation is something you would like to think about on behalf of your loved one, you can speak to us

You can also call the
National Referral Centre for Tissue Services
on 0800 43 20 559

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Donating a body

This is important for training and for research

End_of_life_care_EasyRead_42.png The patient is the only one who can agree to donating their body – they must have agreed to this while they were alive
End_of_life_care_EasyRead_43.png If you want to know more about donating a body, scan the QR code on the left
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Or click on the link below to go to the website

Donating a body

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Keeping in touch with the ward

We will ask for your contact details – keeping you up to date with everything is important to us

End_of_life_care_EasyRead_46.png If there are times when you would prefer not to be contacted, please let us know
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You can contact us by

  • calling the hospital switchboard and asking for the ward you want
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  • or by calling the ward directly

Please ask the team looking after your loved one for the ward contact number

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UCLH switchboard
020 34 56 78 90

Or

084 51 55 50 00
(this is a premium rate number – you will be charged more money to call it)

End_of_life_care_EasyRead_50.png If you would like to talk to us in confidence about the care you or your loved one has received, you can contact PALS (Patient Advice and Liaison Service) for information and advice
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You can contact PALS by phone on

020 34 47 30 42

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Or by email at

uclh.pals@nhs.net

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You can visit their website at

PALS at UCLH

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Care in the last days of life survey

End_of_life_care_EasyRead_55.png If you would like to fill out our survey about your experience, scan the QR code on the left
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Or click on the link below to go to the website

Care in the last days of life survey

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If you have any questions, you can call the Transforming End of Life Care Team on

020 34 47 78 42

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Or email them at

uclh.transformingeolcteam@nhs.net

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UCLH Charity is here to make a difference to patients, staff and research at University College London Hospitals

End_of_life_care_EasyRead_60.png To find out more about our work and how you can support us, scan the QR code on the left
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Or click on the link below to go to the website

UCLH charity

End of life care easy read NEW

Click here to download the PDF

Page last updated: 26 November 2025

Review due: 31 October 2027