Information alert

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We may ask you to fill in questionnaires about your health and quality of life, before and after your treatment. These are sometimes called patient reported outcome measures (PROMs). Your feedback helps us measure the outcome of your treatment at different times. We encourage you to take part, but if you do not want to, it will not affect your care.

Benefits of these questionnaires

They can help your clinical team understand how you feel about your health, and which parts are bothering you. The information you give can help guide decisions about your care and treatment. It can make the time you spend with your healthcare team more valuable, allowing them to focus on what matters to you the most.

What sort of questions are asked?

The questionnaires ask about your health. They cover many areas including your current symptoms, as well as general wellbeing. They can let your healthcare team know how you are feeling and functioning, from your point of view.

How will the results will be used?

Your responses will be reviewed and discussed at the appointment with your healthcare team. This will help to monitor your progress and address any symptoms you are having.

Completing questionnaires in MyChart

MyChart is an electronic platform that keeps you connected to your healthcare team. Once you have an account, you will be asked to complete the questionnaire at the start, weekly during treatment, and before each follow-up appointment. To make sure you're notified promptly when a questionnaire is ready to be completed, please enable push notifications in MyChart.  

In your web browser, enter: https://mycare.uclh.nhs.uk/MyCare/

If you do not receive an activation code for MyChart sign up, or need help to complete a questionnaire, please speak to your healthcare team.

How long does a questionnaire take?

Each questionnaire will be sent to you weekly while on treatment and should take less than 10 minutes to complete. The first time might take longer as you familiarise yourself with the questions.

Your usual care

Your responses are used alongside your usual communication with your healthcare team. The questionnaire will only be reviewed during your routine appointments.

If you have symptoms which need urgent attention, it is important that you contact your healthcare team in the usual way for support.

Choosing not to participate

If you do not want to fill out the questionnaires, you can opt out at any time, and it will not affect your care. Your appointments will still take place as usual, but the healthcare team might have to ask you more questions to understand how you are feeling.

How your information will be stored

Information from these questionnaires will be stored securely in your electronic health record. We will store your information safely, and we have strict rules about how it can be used. If you have consented to your data being shared to the National Proton Clinical Outcomes Unit registry these questionnaires will also be included.

Contact us

Radiotherapy Review Team (via Radiotherapy Reception) 
Telephone: 020 3447 3700 / 3701 

Proton Beam Therapy Review Team (via Proton Beam Therapy Reception) 
Telephone: 020 3456 8000 / 8001 

Out of hours oncology advice number (available 24 hours)
Mobile: 07947 959020 

If you have any concerns that you would like to discuss in confidence, please contact our PALS (Patient Advice and Liaison Service) for information and advice. 
Telephone: 020 3447 3042 
Email: uclh.pals@nhs.net 

Services


Page last updated: 01 July 2025

Review due: 01 July 2027