The Haemophagocytic Lymphohistiocytosis (HLH) Service was established at UCLH to offer high quality care for adults and adolescents suspected of having HLH. We provide multi-disciplinary care for patients with HLH in-patients and out-patients at UCLH, and an advisory service for patients outside of UCLH. Patients are referred from other secondary care providers or from GPs. Our team consists of doctors from rheumatology, haematology, infectious diseases, virology, neurology and critical care. Our patients are supported by our psychologists, clinical nurse specialists and physiotherapists. Patient aftercare will depend upon patient need, but is likely to include follow-up in consultant-led clinics, and email support from clinical nurse specialists.
Service management
Ahet Gaygusuz
Other contact information
Useful links:
Histio UK: https://www.histiouk.org
Address
Department of Rheumatology
3rd Floor Central, 250 Euston Road
London NW1 2PG
Email: UCLH.HLHMDT@nhs.net
Referral
Other referral information
The HLH MDT meeting occurs on the 1st and 3rd Wednesday of the month at 17:30 and every Monday at 11.45am and lasts one hour. Attendance is by invitation only. Clinicians can request an invitation by contacting UCLH.HLHMDT@nhs.net.
Clinicians from all specialities and from any NHS hospital are welcome to join. A proforma will need to be completed and all patients will be registered at UCLH for accurate documentation. Please note, for urgent clinical advice, please call the HLH on-call via Switchboard, Monday - Friday 9am to 5pm. Please note the SOP and TOR on this website.
Useful links:
HiHASC: https://www.hihasc.org
Referral address
Department of Rheumatology
3rd Floor Central, 250 Euston Road
London NW1 2PG
Referral forms and guidance
| Thumbnail | Title | Size |
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1. HLH MDT Standard Operational Policy | 3.45 MB |
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2. HLH MDT referral proforma 2024 | 3.11 MB |
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3. HLH GIRFT Guide July 2024 | 1.61 MB |
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4. HLH Guideline April 2024 | 0.95 MB |
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5. HLH antimicrobial guideline | 0.29 MB |
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6. Primary HLH testing | 3.38 MB |
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7. Guidelines for deep skin tissue biopsy | 0.66 MB |
